Welcome! Thank you for visiting the Chelation Therapy for Autism message board. This is a place for support, discussion and friendly debate. This board is designed for those who hold the belief that heavy metal toxicity and/or environmental exposures (ie: mercury/aluminum from vaccination) are the probable cause for regressive autism. This is the main topic of discussion but subject matter is not limited to chelation alone. This message board does not constitute medical advice. Consult your physician for medical advice.
Any Chelation Success?
by Robby's Father
Has anyone had any success with chelation therapy for mercury and autism? I would like to hear from anyone who has tried chelation therapy. Either positive or negative experiances.
We have had success with our 7 year old son. We have been chelating off and on for a year. Mostly off, because of his other problems. The ALA (that chelates the brain..from health food store) tends to activate his reflux. Once the chelation cycle is broken, you have to wait and start again.
After the last chelation round with ALA, he went to summer camp for a week. When I called to check on him that first evening, they happily told me how much more interactive he was than the week he went a month before. They said he was pointing at EVERYTHING. I explained that this was shared learning and that when he points then he wants them to talk about it. I told them that kids with autism generally do NOT have a history of pointing. (though our movies before his regression show that he did point ALL the time) The pointing only lasted for 2 days, though.
His eye contact has improved tremendously, his body is less sensitive, so he is more cuddly, and he sometimes has more spontaneous speech following a "good" chelation round. (one where he doesn't throw up)
One thing that I find particularly interesting, after he finishes a chelation round he has had "typical" mannerisms a few times. Things like standing with the hand on the hip and the arms folded across the chest, or "Indian" style are things that he doesn't do and things that I didn't even know were NOT present until I saw him do them. Then it goes away.
But there is a steady progression. If you watch the movie from University of Calvery, though, it makes more sense to just know that those cells are basically being held hostage by the mercury. Until the bottom mercury is removed, then the cell will never be able to rebuild. The progress I see, I assume is from cells with less mercury that are being "cleared" before some of the ones with more mercury.
And to your question below...yes we have had "challenge" tests done before and since. There is mercury coming out in small amounts.
Good luck! Chelating is hard, but to me it is the only real solution. (autism=mercury poison) ABA is wonderful too, but you are basically "training" cells to take the place of the ones being "held hostage". That still leaves the mercury in the body. But still...I know children that have done SO WELL with ABA, that if your child is young enough, then that is an option too. We did ABA, but our school district at the time did a lousy job. (no kidding, the brain-dead dimwits they hired to do the hours that they would provide would tell us that "we don't really get this" or "we don't really know what we are doing". The only thing worse than no therapy is bad therapy. It is nearly impossible to "unteach" after something has been taught wrong.
Yes we have used DMSA also. We did not do a hair analysis, though. Seeing the mercury come out in the challenge test was enough for me. (mostly because $ is tight...I have to make sure we can chelate and supplement Troy...and from time to time get new metals tests run)
It is very busy and "high volume" there. But everything gets answered quickly there. (if your question gets overlooked (rare) post it again) It isn't as personal there, since it is so busy, but it isn't unfriendly either.
I'm the grandmother of a 3 year old HFA for whom chelation (pills) has. Vangie Aw been recommended. I want to learn more about it as I feel it's all smoke and mirrors and it's just the latest fad. If you have had positive experiences, I am very interested. Aalso, do you know of any NEGATIVE things about chelation? MAny thanks - Vangie WEiss
I already posted on my son's progress (above), so I won't be redundant, by posting it again. I just hope that you will be supportive of this or any therapy for your grandson.
And to Barb...your son is ADORABLE! What a cutie pie! I'm always glad to hear a child make gains, any gains. Take care!
You will need to register with yahoo and JOIN THE GROUP to view. This is free and then you can join lots of groups that you can choose. There are many Autism related groups.
We do various therapies and treatments and I am a firm believer in things workign together as a complete package.
We do the CF portion of the diet which helped a great deal healthwise.
The vitamins and supplements- amazing how he improves.
For instance within 3 days of starting th ecod liver oil his eye contact improved by 80%.
Within a few days of starting Carn-aware- his attention span and awareness of things around him improved greatly.
We have done chelation on and off, becuase my son gets the yeast overgrowth in his gut.
A year ago my son wouldn't respond to his name, or follow any commands, he was in his worst health with tourette like tics, severe diaper rash that bled, and so much more.
Today, though still non verbal- he response to some simple commands, responds to his name. Learned to ride his trike, and is learnign to swim.
His eye contact has improved greatly, the tourette like tics are gone, as well as the diaper rash.
Chelation, I can defiantly say has brought about some of the coginative things such as awareness, affection, attention span.
I think here again, it is is one of those treatments- if it fits use it.
Our son defiantly regressed after his 15 month check with shots, and we traced his vaccine records that showed over 250 micrograms of Mercury he had been injected with.
SO for us, it makes sense that he would be getting better since we started getting rid of the Mercury burden in his body.
please write to me and tell me more about your son, i have the same problem and am confused on whether to do chelation or not, my sons hair analysis shows high metals but lead in blood is negative. Thank you, any info is great. Stacy in NJ
Hello, I just found this sight and very happy to hear your success. I live in Australia and have an 3yr son diagnosed with PDD at 2yrs. We are just looking into Chelation therapy but do not know much about it.
I am desperate tofind out any info or your experiences you have had. Also have you tried the gluten free diet if so did it work.
Can anyone tell me how their child did during metal chelation? I am looking for someone to compare notes with while my son who is 4 is going through this. I am seeing regression, more stimming, and bad moods and temper tantrums.
I was interested to know whether either one of you has used any hair,urine, or other analysis to gage the degree of chelation of the mercury. Or are you basing results purely on the child's behavior?
My 4-year-old son was autistic from birth, I believe. My mom is trying to convince me that it was caused from his vaccines and get me to take him to Pfeiffer Treatment Center in Illinois.
From the time he could sit up (5 mos), he would rock in his crib and bang his head on the headboard. He would also rock in any chair he sat in. He started walking at 10 mos, but walks on the balls of his feet and always has. His eye contact is good and always has been. He is verbal, but didn't start talking until he was 3-1/2, and still doesn't say any full sentences yet. However, he knows what is being said to him, and his speech is improving almost daily.
He only has 1 kidney and had health problems at birth, though he is now healthy and in the 95th percentile for height and weight.
It kills my mom to see my son and entire family not living "normal" lives, and she calls me almost daily to give me information on new autism treatments she has found. She doesn't think we're doing enough for him, but we're doing all that is available in our area (1/2-day PPI class, 5 days/week, 2 20-min. sessions of both speech and occupational therapy, and we get him private speech therapy for 1 hour/week as well.) He has improved greatly, and I truly believe he will some day be independent.
I read about chelation therapy, and it terrifies me. Since my son only has 1 kidney, his pediatrician is really apprehensive about prescribing ANY medication for him, except as a last resort. All the vitamins and "capsules" that chelation requires scares me to death.
I guess I'm just trying to get some feedback and compare notes regarding the stories behind their children's autism. Thank you!
I'm glad that your son is making improvements daily. That is really good.
I tend to agree with your mom about the vaccines. (don't you hate that!? Sorry) My son was fine. I have videos of him playing, laughing, pointing, shared learning, play-acting and talking, talking, talking. Then after his 18 month vaccines, he got very sick and lost it all.
The thing is, they give vaccines to children starting with the Hep B when the babies are 4-6 HOURS old. The mom barely knows the child yet. Then they finish the Hep B series at 2, then 4 months.
Dr. Amy Holmes has a son one month younger than my son who was every bit "autistic" as my son acts. Her doctor did a lead screening test. His levels of lead were high. Dr. Holmes began chelating her son for lead using the typical protocol. While chelating, tons of mercury started coming out after awhile. This puzzled her. She began to research where this could have come from. She and other scientists (moms), researchers, have found that while the EPA standard for "ADULT" safe exposure is .1mcg. our children are being injected with about 238mcg. of mercury by the time they are in kindergaren. (that is a decimal up there .1mcg) (I learned this from her old posts as she was putting it together, plus I try to follow what she does now)
Dr. Holmes has changed her practice. She is in Baton Rouge, LA. Her son is very healthy and very NOT autistic now. While chelation can be scary, it is not as scary as NOT chelating, to me. And, now that I have been doing it, it doesn't scare me at all. I find schools scarier.
Regarding rocking and toe walking, those are physical symptoms of a bowel impaction. I just found out that my son had an impaction in two places. They are unbearably painful and he has been likely suffering with this since he regressed. Sudden crying were signs that I got used to. When he was toilet trained at 5 years, I knew that something wasn't right. Doctors told me that it was "psychological" toileting problems. (Whatever!) Then I found a doctor through references in Chicago, IL. Dr. Richard Sandler at Rush Presbyterian Hospital. He has been great and was able to easily help us flush colon. I would highly recommend him if you aren't sure.
Also, regarding head banging...my son hits his head to indicate a migraine. I have learned through the years (he is seven) that he tends to "act things out" to communicate to me. If he hit is head on something, he hits me on the head to show me what happened to him, etc.
When my son was first DX with PDD, the autism rate was 1 in 10,000. Now it is 1 in 250. At this rate it is projected to be 1 in 25 within the next decade. The National Institute of Health declared it an epidemic in 2000. There is no such thing as a "genetic epidemic". I do believe that some kids are more mercury poisoned in the womb than others by their mom's dental amalgams and/or through fish consumption. (lots of mercury in each can of tuna) And I know that genes can be mutated by mercury. But I, and many others believe that autism = mercury poison. Also other degenerative diseases like Alzheimers, Parkinsons, ADD, ADHD, Chronic Fatigue, Lupus, Schitzophrenia, OCD, etc are being linked with mercury and have similar treatments as autism)
I hope I hit on all the major points. Good luck with your decisions. I think you are so lucky to have a mom that is involved. Our families on both sides are fine with us withdrawing from occassions, etc. My mom even told me one time that I talk about it too much after I was telling one woman who was VERY interested (she knew Troy before he regressed) what happened with Troy and what we were doing.
hi, my name is mari, i have a 7 year old son whom was
recently classified as having asperger syndrome. this was done thru school system after testing him for everything from dyslexia to add. i just saw an old friend this weekend and told her about this, after listening she asked if i had ever looked into mercury poisoning, i responded no, why should i?, she went on to advise me that her 14 year old son was diagnosed with autism when he was 12. pryor to this, he was an honor roll student and very outgoing. in his 12th year he became depressed, school grades plummeted, he became anti-social and even suicidal. she was advised
to contact dr amy holmes. it seems that he had some
booster vaccines at 12 and about 6 mos later all this
came to fore. at this date, after chelation therapy. he is fine and back to almost normal.
my question and i have many, i look back at my son when he was in pre-k, he was so outgoing, his speach was so spontaneous, loved to make eye contact, did not
finger flick or shift from one side to another, then he had vaccines to start school, things changed. also, i think back to my pregnancy, i had to have an MRI for
some numbness i was experiencing, who knows, maybe this should not have been done, also have amalgam fillings and also had 3 rhogam injections due to RH
negative factor, i am convinced he has mercury poisoning, probably from vaccines as well as from me.
I am just looking for advice, where do i start, please respond with any information..thanks, Mari...
I'm glad that you posted this. I had been agonizing over getting my daughter her Hep B all summer. (for fifth grade) She is a wonderful girl and makes excellent grades. But there are two moms that I know where their 2nd born children have autism and their first children daughters were fine until they had these vaccines. After that, their daughters both developed Crohn's Disease, and one of them also developed Chronic Fatigue syndrome.
I wound up getting my daughter a waiver, but then the nurse called me and said she didn't need her Hep B anyway. (she had already had it)
You can email me at ericshirl@hotmail.com if you have any specific questions. I'm not sure if you are more interested in researching or how to get started, so I'll try to cover a little of both.
There is a paper at this site http://www.autism.com/ari/mercurylong.html
On the fourth or fifth page it has a list of mercury poisoning symptoms paired next to the autism "characteristic". They are the same.
I do think that chelation would help your son. Aspergers is part of the autism syndrome, just not as severe. (as is ADD, and ADHD...they are all different degrees of mercury poisoning, likely depending on which cells are being held "hostage" by the mercury)
First you need to remove any mercury amalgams that he has and have them replaced. (they call them silver fillings) If you chelate with the mercury in the mouth still, you will pull the mercury from the fillings into his system, further poisoning him. Here is a state by state list of mercury free dentists. http://www.altcorp.com/hgfreedentists.htm
Our dentist isn't on any "mercury-free" list, but when we moved here and I told him about my mercury concerns he told me, "Well, THIS office hasn't used mercury since 1992." But it is not something that dentists advertise, so you might just want to call around.
Then you need to start chelating. If you want to use a doctor, then you can look at the DAN list of doctors at http://www.cgiworker.com/danlist/danlist.html
It is a state by state listing and is supposed to be updated within a week, too. These doctors follow the DAN protocol for detoxing mercury. They will do a "challenge" test. This means they will give your son a chelation agent. (the mercury "binds" to the cells and is NOT detectable until the chelation agent stirs it up) Then you have to collect his urine and have a urine metals test run. Often lead comes out before mercury, though.
Your doctor will prescribe DMSA to be taken every eight hours for 3 days, then minerals and supplements for 11 days. This is one cycle of chelation.
If you chelate without a doctor, you can buy the DMSA at www.vrp.com
-We have a DAN doctor that prescribes it, but I order extra there at VRP, because I tend to "waste" a lot of DMSA, trying to get it in him.
Also...this is VERY IMPORTANT....
DMSA will NOT cross the blood-brain barrier and chelate the mercury out of the brain. You need to buy lipioc acid (also called ALA) at the health food store. Dr. Andy is VERY rigid about his opinion on this. He believes you need to chelate every 3 hours, no more than 4 hours apart. He has written a book about chelation and he is a chemist.
My experience is that he is right about the lipioc acid, most definitely. Each time you give the lipioc acid, it pushes the last one with mercury out. You don't want to do it every eight hours, because the mercury will just sit there and can cause discomfort and stimming.
I do know a lady who chelated her children with lipioc acid only every 8 hours. But if you read her success stories, her children had a lot of negative reactions that may have been prevented if she would have done it every 3 to 4 hours.
Dr. Andy is available at the autism-mercury board to answer questions. That is a really good group. It is very high volume. (not as "personal" or "friendly" as other groups, but not "unfriendly" either...just busy)
You can get anything answered there. (sometimes you might have to post it twice, though)
Good luck and email me if you have any more questions. I hope your son thrives on this therapy!
Hi Mari, I'm interested in the Rhogam factor that you mention; I had 2 shots, 1 during pregnancy and another following delivery due to being RH neg; I also had 3 scans due to various probs. I'm only just beginning to investigate this mercury link to autism ( my 12 year old was diagnosed with Asperger Syndrome about 4 years ago) as we lived in ca when she was born and I did note a reaction to the first DPT shot she had; they subsequently omitted the Pertussis part due to this reaction - it's only now that I've realised there could be something in it and have contacted a NY law firm as I believe they're looking into launching a class action suit against the manufacturers of Thimoseral (sp?) which the DPT vaccine was allegedly preserved in.
Crikey, I've waffled on a bit; would really like to hear your views Mari (and anyone else who'd like to comment)
I have a friend that signed up with Waters and Kraus. They were going to do a class action. Rumor is that they are getting their credentials to file claims for the NVICP, because of a case in Texas that was recently thrown out. I believe their class action was halted because of this case. With vaccine injury cases, they need to be filed with the National Vaccine Injury Compensation Program first. The case in TX that was just thrown out, the judge ruled that the way the law was written, vaccine injuries must first go through the NVICP. It set a presidence (sp?) in TX.
There is a mother, Lyn Redwood, that is suing many companies for mercury poisoning. She didn't limit it to the vaccines. I think she has a good shot. She is a nurse, husband a doctor, and she is very well researched and has her ammo in order.
I also heard of another lawsuit in FL. I don't know anything about this one, only that there is one. So, there are people doing it. So, you can try it that way.
I don't mean to be discouraging, but I think you need to know all of this. There is a statute of limitations on filing for the NVICP. Right now it is 3 years after noticing the symptoms. (following the vaccine) This might be changed to 6 years if Dan Burton's HR 3741 passes. There is a petition at http://gopetition.com/info.php?petid=1266
It only takes a second to sign it.
If you are interested in some excellent attorneys for the NVICP, here are two that I know of.
They work hard and keep you informed. Jeff Sells of Hitt, Patterson, Sell, has twins with autism. He is very active in advocating for ASD children. He is on the ASA board.
The problem right now with the NVICP is that "mercury" is not one of the "injuries" that can be compensated. But...the way the law reads, you HAVE to file with them first. But...First...is the key. If you are denied, then you can sue. I think that the NVICP would rather settle than to have all these drug manufacturers sued. That is why the government came up with the program to begin with.
One more thing...if you go read about the NVICP, don't be discouraged by the settlements. It reads a cap of $250,000 for injury or death. But that is just for the injury and death part. They have settle with millions. (they pay for lifetime care...and the estimate is $2 million for the lifetime care of a child with autism)
thanks for posting this, i am new to this , my son was just diagnosed about 3 mos ago, but i am so excited about this info on mercury poisoning, it seems that after researching this, there has , or seems to be, so many things that make sense to me regarding to nick's
behavior. i have not even had him tested yet, i will be looking into this before school starts. looking back to aroud the time nick had his boosters for pre-k, about 1-2 months, he starting seeing floaters, are you familiar with this?, we took him to his pediatrician, he said nothing was wrong but suggested he see an ophthalmologist, after testing he advised that nick was having episodes of migraines, just not
complaining of pain, this went on for some time. now that i think on it, it was more than likely reaction to the mercury binding. it upsets me so, but at least now i can see the light at the end of my tunnel, or i should say his. he used to be so outgoing, used to hold my face in his hands to speak to me, now he won't even look at me or anyone else , he still talks up a storm, but does so with much stimming, i can not wait to get this started.
i feel that betweem my rhogam injections, my silver fillings and his vaccines, he is no doubt poisoned.
i will post u when i get started on therapy, i am still looking into the where's and how's..
shirley posted me with many websites to look into and i am very grateful...thanks again....
We live in Richmond,VA and there is a fantastic developmental pediatrician named Mary Megson here. She recommends cod liver oil as part of autism treatment and it has helped our first son (who is autistic) immensely. It has also recently started to help our four-year old who is developmentally delayed. You can learn about it at the Kirkman Lab website www.kirkmanlabs.com.
From another board...a VERY user-friendly site with a state by state listing of Senators to contact. I hope everyone can make it there.
At the last minute, the bill was withdrawn from consideration Wednesday, and will be RESUBMITTED NEXT WEEK AS A SEPARATE BILL. It is imperative that all parents of children with autism ( ADHD,ADD, PDD-NOS) contact as many people as they possibly can to let them know about this site (www.stopfristbill.org) and register your displeasure. They need to know there are thousands of parents who are watching them.
Go to www.stopfristbill.org, which is a website created to allow you to send your displeasure to you representative and others. Everyone needs to know about this.
Unlocking Autism is proud to offer an official VHS copy of the Unlocking Autism Biomedical Conference from November 3rd, 2001.
This video is over 4 hours long and features guest speakers, Dr. Amy Holmes, and Dr. Stephanie Cave. Dr. Holmes speaks on her son recovering from autism, issues related to Mercury Poisoning, and
chelation. Dr. Caves, tells about her son with ADD/ADHD, and vaccine issues related to the ASD spectrum.
Lots of valuable information here!
There is also a Parent to Doctor answer session after the lectures and a moving display of photos of children with Autism set to music at the end.
Now you can watch and listen to these two wonderful doctors in the privacy of your own home.
Each video will be $20. Shipping will be $2.00 for media rate.
Includes a FREE Unlocking Autism Bumper sticker!
Please email the Unlocking Autism State Rep. of ND at:
bjroth@lycos.com if you are interested in purchasing one or more.
My son turned 5 last Saturday. We have been chelating him for over a year. He has also been on the diet for this time as well. How necessary is the diet? My sons osteopath says he needs to atleast stay away from wheat but I never thought wheat was ever a problem. I use to think milk was but I don't know if it still is. Is anybody chelating and not using the GFCF diet? Is it o-k to do this?
Rebecca
As each child is different, some can go off the diet, others regress if they do.
For us our main "stims" regressions and behaviors occur when our son injests casein. And not the Wheat.
We had his peptides tests for both Gluten and Casein and he should he could tolerate Gluten but his CAsein results were 50x's higher than normal.
Since we also feel that he is Mercury Toxic and we are chelating. I found it interesting the the Mercury inhibits the enzyme that breaks down Casein. That is those are the main reasons we took himoff of Milk and other Casein products. The results were incredible.
We also use Digestive Enzymes. I have heard many use the enzymes ans start haviugn infractions of Gluten and Casein in their kids diets without any problems.
A few are brave enough to go off the diet.
We started the enzymes because our son could no longer digest food. We we find it is an added benifit that he can indeed have a infraction of casein now and then. We have not tried to go completely off the casein free portion of the diet, although we do let him have Gluten.
There is a group that deals with Autism and Enzymes you may find them very helpful-
Our son is so self-limited in his food choices we would even be greatful if by taking the enzymes he gets the urge to at least try something with Gluten and Casein that the Enzymes will digest it for him.
Please take time to sign on-line petition for HR 3741
by Shirley
It only takes a second, and I don't think the names are viewable on-line. (I tried to look for mine) (if you get a chance forward it and add it to other boards that you frequent. Thanks!
Shirley
Please feel free to pass this along to everyone you know. Also, note that while your address is not required we will need this info to forward the petition to appropriate state representatives.
Unlocking Autism needs participation for mercury poisoned children for Ad campaign
by Shirley
This is from another board...I hope many of you participate. I feel that Representative Dan Burton is close to blowing this thing wide open. This could really move things along.
Shirley
Hello All,
Thanks everyone for your offer to contribute! We have the following "Help Wanted" Ad going out to all lists. If everyone could forward it to their lists also, I think we can really get a huge response. For those of you that are on the lists that this ad goes out to, could you please respond to the ad on the list. We want everyone to see a huge response to this so they'll also want to contribute. We're working on getting this ad perfected so we can present it to Dan Burton next week and then on to every organization that we can think of who has an interest in this. As soon as we have the rough draft of the ad ready, I'll send it out to all of you. We've got some great people working on this and it will be powerful, moving, coercing, and have a clear message. I'll update every week with numbers but we're up to 67 sponsors so far. If you want your child's first name and age to be on the ad, please send me this information. We hope to have thousands of names on this ad. Thanks for all of your help in this.
5.1 Million People Will See It.
78,717 Children Will Feel Your Love.
519 Politicians Will Hear Your Voice.
And Three Words Will Come to Your Mind…
“It’s about time.”
We are parents of children who were unnecessarily injured by organic ethyl mercury and other immunosuppressors in vaccine inoculations. Autism, ADD, ADHD, asthma, and autoimmune disorders are just a few of the results that we live with day-in and day-out.
We are educated…focused…self-made researchers with an emphatic drive to improve our children's lives. We will not turn our backs on the truth simply because government-appointed science does not live in our homes and experience our knowledge first-hand.
We want our children to play, speak, hear, smile, share, discover, grow, love, learn, live. We want them to have clarity, comfort, a sense of belonging, and most of all, healthy bodies. Maybe next year they can finally have an ice cream cone or participate in an Easter egg hunt. Maybe someday they will simply be fine. But right now they are not. We need to take this opportunity to be heard.
Currently, drug companies are being nurtured by certain members of the senate. This may result in the removal of any accountability and future responsibility on the part of drug companies. You could easily spend $300 traveling to Washington DC to show your disapproval, or you could simply spend $50 to include your name in a full-page advertisement in the Congressional section of the Washington Post.
This full-page ad will educate the public about how environmental toxins have affected our children. Its message will also appeal to senators and congressman who can help our children today and in the future. The more we band together, the more attention will be given to our children who desperately need it. Please send $50 to include your child's first name and age on this ad. Then one day soon you'll be able to say to your child, “I did this for you.”
Be a part of the healing. Be a part of the hope. Contribute today.
Contributions by check should be made out to "Unlocking Autism" and sent to:
JoAnne Pike
2530 N. Hwy. 41A
Marion, SC 29571
If you'd like to use a credit card, Unlocking Autism (www.unlockingautism.org) is in the process of setting up a special link which should be ready soon.
For those who contribute, you'll have an exclusive opportunity to see the ad before it's run date.
MY SON IS 10 YEARS OLD AND ON ROUND 7 OF DMSA. IF ANY ONE HAS AN OLDER CHILD THAT HAS SHOWN ANY IMPROVEMENT PLEASE LET ME HEAR FROM YOU. I REALLY NEED A SUCCESS STORY.
GINNY
Please don't give up. I think that you need to add ALA with the DMSA. (also called lipioc acid) It can be found in the health food store. Start with low doses. (25 mg...divide if you can only find 50 or 100mg)
Many people that are chelating don't see changes in the "autism" part of their children until they add the ALA. The DMSA will chelate the mercury out of your child's GI tract. The ALA is the only thing that I think is known that can cross the blood-brain barrier and release the mercury from the brain. When ALL of the mercury is freed from the brain, your child will be NOTABLY better. The behavioral problems can be from the GI tract, too. But the speech delays, visual perceptual problems, most of the sensory problems, I think are from the mercury in the brain.
Dr. Andy cutler from yahoo groups Autism-mercury groups has a lot of experience helping people chelate. He believes that when All of the mercury is gone, the brain CAN AND DOES heal. This does not mean that you will not see results with each round. Each brain cell affected may have mercury clung to it. When you get the bottom mercury off the cell, then that brain cell can heal. So if you free some of the brain cells, they can start healing while they work on others.
Don't give up prematurely. Chelation is the hardest thing that I have done. But it has shown the best results of any intervention. (my son is 7, almost 8)
We are considering chelation for our older son, 10 years. Do either one of you follow chelation with hair or urine analysis to determine when all the mercury is chealated? What do they show?
I have two children on chelation. One is 15 months and the other is 2.5 years. I started out following my doctors every other day protocal of DMSA. He also wanted them on ala everyday. I quickly found that this did not work for my children and brought Andy Cutlers book. I changed their protocal completely and things are better now. My baby gets dmsa and ala three days on and eleven days off. My two year old gets dmsa three days on and eleven days off. I will add the ala when his levels go down. (the baby has arsenic - the two year old does not) The baby seems to be handling things well. The two year old is developing wonderful language but his emotions are real difficult to deal with. What is the best protocal to use? Can someone give me a time frame of when behaviors might calm down? We are only a month into this.
kristen -
I tried to write earlier today but it did not post so I will write again. My son has been on the gf/cf diet since he was 19 months. Everyone including the doctor insisted that he was fine but I am a special education teacher and worked with autism for quite a while. I knew what I was seeing. We started to loose him completely in January - In April we started the diet. In May I took away EVERYTHING that was suspect (corn, soy, eggs, apples, oranges etc. etc.) By mothers day of that same month my son started coming back. By the end of the summer he started speaking. Over the year he grew to have quite the extensive vocabulary but his speech patterns concerned me a great deal. Mostly he used one word and two word sentences. His pronounciation was difficult to understand. With in two rounds of chelation we were able to understand everything he said. He is starting to use 3,4 & 5 word sentences (yesterday he said uh oh! - the car is in trouble!) when his car fell off the table. He is constantly hugging his sister now and starts games with her too! (Come on Samantha - lets go!) BUT......
his emotions are all over the place and he is stimming once in a while. (HE NEVER REALLY DID THESE THINGS BEFORE CHELATION!)This scares me and I was wondering how long it takes for things to calm down. Any ideas?
Because they say that the oral passes the blood brain barrier much better than the IV, especially with the alpha lipoic acid. And that is where the mercury is causing our kids communication and developmental problems. The IV is much more invasive and it's 4x more toxic. So putting those all together and deciding which one is the best for these kids, most parents and doctors agree on the oral. I tried the IV before I started my son on the oral cause I didn't know which one to do. But he was only two and we noticed huge gains just with the first dose. I couldn't imagine trying to make my, then, super hyper little boy to sit for three hours with a needle in his arm. But like you, if I thought it was the best way, I would've done it too. Goodluck and I hope your little one recvers with either method you choose.
Tami
I am 54 years old, female, diagnosed with mercury toxicity. Also diagnosed with ADHD, NVLD, and possible slight autism.
The DMPS by IV, in addition to dietary changes, amalgam removal, increased exercise, cilantro and sweet potatoes, has made substantial improvement in my bodily symptoms. However, my brain symptoms, if anything, are worse this week than ever before, to the point that I am having to stop working due to confusion, memory problems, anxiety attacks, and very intense internal conversation waves that distract me to the point of losing track of whatever I was trying to do.
I work as an independent contractor to assist teenagers and adults with autistic spectrum issues, and ADD. Because of my work, I am able to recognize that what my brain is perceiving right now is not "real" but is effected adversely by misbalanced chemistry. Even with that awareness, I am still drowning inside my head.
Where I am at this point suggests that what has been written about DMPS not helping with the brain involvement may have merit. My brain definitely needs help, and my body is feeling great for a change.
Hi, I am new to this board, but not to mercury poison, vaccine damage, or chelation. My son was a normal 2 year old who suffer both vaccine damage and mercury poison, resutling the the loss of everything. He has regained most of his gross motor skills, but fine motor are lacking, but better, and speech is still missing. He had over 100 words and spoke in complete sentices and ask questions at the point of loss, so we know he can talk, at least could. He will soon be 10, and in the last month has master the word OH and MORE. He does say many things, but they are in a low toned garbled mess where you hear the influection more that the word, so you have to pick it out and guess quite a bit. He fully understands what he hears.....which is wonderful! I am wondering if anyone else had a child this delayed and did they make more in the way of recovering? what helped? What form of chelation did you use, DMAS< DMPS<ALA<extremehealth< or a combination of many thing. We have tried everything, and while he has made some progress, we had to stop using DMAS due to yeast that raged out of control despite on going treatment for yeast. Yes he get tons of therapies, but that seems limited to help as he has such health issues. So what am I missing, or he just so profound, recovery isn't going to happen.
same thing with my son and this is what his doctor said
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Hi. My name is Tami and my 3 year old son is named Gavin. We discovered the mercury poisoning a year and a half ago and have been chelating with DMSA and alpha lipoic acid ever since. He has gone from saying 6 words unproductively to saying sentences like a normal kid. He can answer questions (not all yet, but he's progressing all the time), ask questions, play typically and is definitely a recovering autistic. Or I should say recovering from mercury poisoning. He is on nystatin continuously throughout the chelation cause his doctor said that the candida won't go away until the heavy metal toxicity does. He said that there is so much of a burden that the body can't regain it's normal balance until it is relieved of it. And he was right. We now only give him nystatin when I remember, cause it's not a problem anymore. We give it now just to prevent it from coming back until he's finished. So please don't stop the chelation because of the yeast, cause it will come back until the big problem is gone. Just proceed with caution and give all those necessary vitamins that is on the chelation protocal on the Autism Research Institute to be sure that it's not hurting him as bad as it comes out. The yeast started going down for us after about 6 months. It takes time, but the payoff is so huge. Goodluck to you!
Godbless
Tami Wilken
Thank you Tami, I am happy you got help at such a young age, this helps so much. We are hoping to start back on chelation next weekend, he is passing yeast, so I am going to give him a bit of healing time. No I cannot give up, I have seen him relearn how to crawl, walk, hold objects, and I will hear him talk again! Good luck to you and Galvin!!
I hope you don't give up chelation. My son battles the yeast, too and we have to go slow. It is hard to get all the stuff in him.
Dr. Holmes first studies showed that children under six did the best.
I just saw recently her new studies show that under 8 do the best.
Dr. Andy Cutler at the autism-mercury yahoo groups believes that once ALL the mercury is gone, the brain cells CAN and WILL heal. I fear that some people will see small gains and give up. I think this is a big mistake. The gains you see along the way are likely to be cells that have been freed up so that they can heal. But, there are more to conquer.
I know your child will be restored someday if you keep plugging away at it. The hardest part,I think, about him being 10 is that he has had ten years of doing things the way he does. I think that the meltdowns when he starts caring about social things will be very sad. My son is 7 and I've noticed that with him. The awareness and changes scare him and he becomes so aware of that gap. It is sad, but you can work him through that, as you have everything else in his life. And this one...there will be a bright rainbow at the end, I'm sure.
What a great message to read right now...we have been fighting my 2 year olds yeast in order to start chelation and have decided to just go ahead after we test his stool this time...Sporanox hasn't seemed to help although he did go from a 4+ to a 2+...I guess that is some improvement...Can you tell me a little bit about your son before chelation???? Thanks
Kristen
HI. I am so glad that you found the chelation this early. I know that if I had found it right when he was poisoned, it would be over by now. But thankfully we did find it early too. At 28 months, we started our first dose. He had severe diarhea, eczema, small seizures that they couldn't detect with that test they give(his eyes would roll back into his head for a few seconds), completely intolerant to kids, unable to use his words appropriately. He had six words that he would use, but not always the right way. He would gain a word and then lose it within a few days. It was heartbreaking. We had tried the secretin (helped a little), herbal teas (didn't notice any change), gluten and dairy free diet (he is still on and helps tremendously), vitamins (didn't notice too much except for the use of Vitamin C with Bioflavanoids cause it helps to chelate the mercury and flushes the toxins out as well), and nystatin (which helps with the intestinal stuff more than the autistic behavior, for him). We got very slow improvements for all of those. But when we started the chelation, it just hit like a bomb going off in his brain. Within two weeks, he had 15 words that he used appropriately. Within a month, it was 50. The next month it was up to 200. And he hadn't lost a single one since we started the chelation. I would cry at night and thank God for letting me find this cure for him. He would stim so much before this that I didn't see much that he did, that wasn't a stim. And when we started the chelation, he would stim more. So I got real scared. But I would notice his comprehension going up the whole time he was stimming too. Now he will stim every once in a while. But if I say, "Gavin, no stimming." he stops. It is rare that I find that he stims though. he is definitely recovering. And I notice improvements still. I just finished a course two days ago and he said, "Look mom, there's Big Bird's Grandma." We were reading a book and there was a picture on the wall that he noticed. And he knew all by himself that that was Big Bird's grandma. Just amazing what they can learn if you get the poison out of their brains. I hope you have lots of luck with your little one and that he recovers as quickly and as much as mine (or more!). I know he will. Just never give up, even if there seems to be a downfall cause they will happen. We hit lots of them. But he never really regressed at all once we started. His stimming would increase and his frustration during the chelation and that's just cause all the toxins are being freed into the bloodstream and he will react to them on their way out. Just know that they are on their way out! Thank God for huge favors!
Contact me if you need any help or just want to talk. I'm always available for anyone who needs help with this. Lots of luck!
Tami Wilken
Hi...thanks so much for your email...I cried when I read it...it is so inspiring. I have such a great feeling about all of this and I am not an ordinarily very optimistic person. We are starting in a couple of weeks...I'll definitely keep you posted on our progress...where do you live??
Thanks,
Kristen
I wasn't sure if you meant me or not, but we live in Illinois.
My son's GI tract is in critical condition right now. We are travelling 5 1/2 hours to Chicago to a pediatric GI that has helped other children with GI problems on the autism spectrum. Our pediatrician and other doctors in our area (St. Louis area, but on the Illinois side) say that his toileting problems are "psychological". (because autism is classified by Leo Kanner as "psychological" does not mean that he cannot have real true "physical" problems like other people...I consider this discriminatory and a ridiculous notion) Our son's GI problems have taken over his personality and educational interventions. Everyone that works with him thinks that he is suffering from severe abdominal pain and discomfort.
We go to an environmental doctor that is on the DAN's list. He recommends we do our own research, too though, so we do a combination of what he wants and lean more towards Dr. Andy Cutler's recommendations.
Following a chelation round he often has spurts of language and "normal" mannerisms. It is funny, but you don't realize that your child doesn't have "normal" mannerisms until you see them with their hand on their hip or their arms crossed in front of them. Then you realize that they've been absent. After our last round he started pointing. (called "shared learning"....he points and wants you to talk about what he is pointing to. Typically, babies do this as a natural communication to develop speech and learning, but it is said to not be present in children with autism's histories...though our son does do shared learning in his videos before he regressed into autism) We were very excited that he was doing this and was interested in his surroundings.
I am very optimistic that your child will quickly respond to chelation. The board owner's child was 3 when she went to Dr. Holmes. He made such vast improvements quickly. I think that the younger they are, the quicker you see the improvements. (at least that is my experience from the stories that I've taken in)
The yeast is difficult, we have to go very slow. If you don't the side effects from stirring up the yeast is a problem. But, we have at times forged ahead anyway. Dr. Cutler on the autism mercury board said that if you get the mercury out of the brain (using ALA) then you will at least get rid of the "autism". There are many children that live with GI problems and can function in society. So, at times I cling to that notion and push ahead.
The hardest part for us is getting all of the stuff in him. If I cannot replenish the vitamins, I don't chelate. (my punishment to myself...lol...I have to replenish and give his body a rest before I let myself do another round.) The other thing is that the ALA makes my son throw up when we give it to him orally. That is a BIG problem that we have to work around. I cannot get ANYTHING in him when he is throwing everything up.
My best advise is to research EVERYTHING, then follow your instincts. You are the mommy and knows your child the best. You will notice the patterns first, etc.
Tami - I have two children on chelation therapy. My little girl is 15 months and my little boy will be three real soon. My son has been on the gf/cf diet since 19 months and most people don't think anything is wrong with him. He has made miraculous progress and we are really lucky that things worked the way they did. BUT... His allergies were out of control and we knew something else was going on. We have been on nystatin for a year and vitamins for longer. The vitamins actually took away my sons lazy eyes. We went through many ups and downs but it looked like he was going to get through this. THEN we started chelation. It has only been a month and his language is wonderful but he is stimming more than ever. He is also extremely emotional. He is an extremely affectionate child and now he is even affectionate with his sister ( he could not stand her until a few weeks ago - now he is constantly trying to hug and kiss her!)I am real happy with his developmental gains but very scared because he never stimmed before like this. Before chelation started it was a very rare occurance! Your letter was conforting but I was wondering how long it took for things to calm down? I also would like to know what protocal you used and what supplements you are giving your son during chelation. This is a new area for me and I love my doctor but don't agree with his protocal. Any information would be extremely helpful. Thank you - Jodi
I didn't do the same protocal as my son's doctor either
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We used the one that they have on the Autism Research Institute's website. Defeat Autism Now! (DAN!)
MERCURY DETOXIFICATION
CONSENSUS GROUP
POSITION PAPER
May 2001
autismresearchinstitute.com
IT has worked pretty well. But after a while, I revised it to combine a little of both. Cause my son's doctor wanted us to do it everyday cause my son's levels were so high. I was scared to hurt him so I started out with the 3x a day for 3 days and then 11 days off. Then by accident I gave him an extra day of chelation. He had a huge jump of improvement. I mean, he went from saying two words together to starting full sentences. It was amazing. So after that, I would do it for longer before giving him breaks. It's worked very well for us. We give him Vitamin C with Bioflavanoids, melatonin, glutathione, borage oil, multi vitamin, and alpha lipoic acid (with the chelation, of course.)
You said that vitamins helped your son with his lazy eye. My son just started to have his right eye go a little lazy too. What kind of vitamins did you use for that to go away. THat is so interesting. I'm so glad you wrote. I was planning on taking him to the eye doctor. This is such a huge relief that it's all connected. Can't wait to hear from you.
Tami
Tami - Thank you for responding! What dosage of dmsa do you give your son? When did you start ala? Do you give both together. We went to one doctor who said my son needed eye surgery at 19 months. My friend begged me to get a second opinion and we found a fantastic doctor who said my son would grow out of it. He prescribed glasses which my son rarely wears. I give him nuthera, Coenzyme 10, vitamin c, calcium, zinc, magnesium, DMG, and extra b-12. I don't know why but it worked. We just had an appointment with the doctor six weeks ago and he was completely shocked by my sons improvement. He said to keep doing whatever we are doing. For a long time when he would have food reactions his eyes would go in - but now it never happens. It is nice to have someone to correspond with. My friends try to be supportive but they don't understand. Please let me know about your dosages of dmsa. And ala. How many days on do you do it. How much melatonin do you give your child and when? What are Bioflavoids? Hope to hear from you soon! Thanks - Jodi
I don't know if this is going to get to you or not. I noticed that it was 2002 when these messages were written. But here goes....
My son is autistic, he is three years old. I have him on the gfcf diet and has had many improvments on it but he still doesn't speek at all. He is very verbal with sounds and sound expressions but can't seem to put a word together.
I have tried going to homepathic doctor but with little success. He is in a program that intails minimal hrs per week. Will be starting a more intense program in the fall.
I am always on the net trying to gather information on this horrible situation. I just want to pull him out of his body and say come back to me! He is a very loving and gentle child. He understands everything I say to him but it's like he's in a bubble and can't get out.
I was wondering what is Chelation? I know it's something to do with removing the toxins from the brain. What if the autism is not cuased by mercury poisoning? Do you think it would still help? Can all brain cells heal from being damage?
I'm at the point that I will try anything to help his recovery. It tears my heart apart to see him have a disability. Life is hard enought without one. Can you give me any suggestions on what I should do?
my son has a lot of health issues also. i have taken him to environmental doctors all over the country, but found the best results with a caring doctor in portland, oregon, who treated him for lead and mercury poisoning. my son is also nine years old, and will be ten in august. we found that he had severe malabsorption, leaky gut, and a severe yeast overgrowth. he also had a faulty liver because of the heavy metals. it can't break down caffeine or preservatives. we got the malabsorption and yeast overgrowth corrected with a sugar-free diet, as well as nystatin. that is when he started getting better. he also stays away from caffeine and preservatives. as long as he does that, he is pretty much a typical boy. he will start fifth grade in august, with no aide.
my suggestion to you is to make sure that the yeast overgrowth is gone. you can get a test kit from the great smokies lab in north carolina, or the great plains lab in missouri, i believe it is. i strongly feel that your child can improve once his intestional integrity is restored. your son can get better. i truly believe that. terresa
I am a homemaker. My son will son be four and is diagnosed as mild-moderate autistic. It truly believe in the ABA Therapy. I visited a school called Christian Life Academy(281-361-8195) here in Houston. The Director has a wonderful program set up. The kids respond when ask a question. I LOVE THAT! However, I can not afford it and this is one of the cheapest in the city. $2100 a month. So one night, I sat up looking at TV and saw an advertisement for speech deayed individuals. I called and said "I need financial support so that I may help my son. The customer service rep said, "I will mail you a Funds Packet." So there must be some individual grant money out there! The number is 800-638-TALK.I hope have benefited someone who help there child. If you know any financial resources please contact me.
Hay un laboratorio llamado Great Plains en Kansas que te envia el kit con las instrucciones para hacerle pruebas de orina, de sangre o de pelo. Luego te envia los resultados por correo y tienes derecho a una consulta telefonica de media hora con Dr. Shaw.
One does 200mg TID two days prior, then day of a 24hr. urine testing. Great Smokey Labs/Ashville, North Carolina can do the test and has the test kit. Whole cost for DMSA and test would cost about 375$ cash. I have active Florida Medical License, tho I work and live in McAllen Texas currently.
Lemurianhealer@hotmail.com
William Wyttenbach, MD
Fax: 956-630-3076
Why would you want to get DMSA without a prescription? Our doctor, Amy Holmes, prescribed it for our son in the proper dose. How would you know how much to give?
when you don't have the help of a physician, you need to help your child
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I can understand totally why they would want to do it themselves. There is a protocal on the ARI website that shows every dose to the weight and all the suppplements that you need to take with it. It is very simple to do and a physician is only really needed to take the tests that reveal the heavy metal burden and to write a prescription for something we can't get. And if we can get it, one less thing we would need them for. I was blessed to have found a wonderful physician along the way, but for those who haven't, they can't just watch their kids suffer. It's hard to understand unless you're in their shoes. Goodluck with your child. I hope he recovers fully. We all have the same goal, to get our children better.
Tami Wilken
My son will begin chelation therapy next week. I heard that aluminum does not respond to regulard DMSA chelation. Does anyone know what type of chelation does? Also, his calcium is very low and dari free & supplements do not seem to have made a difference. Does anyone know of calcium brand which may be given via IV that does not contain aluminum?