Welcome! Thank you for visiting the Chelation Therapy for Autism message board. This is a place for support, discussion and friendly debate. This board is designed for those who hold the belief that heavy metal toxicity and/or environmental exposures (ie: mercury/aluminum from vaccination) are the probable cause for regressive autism. This is the main topic of discussion but subject matter is not limited to chelation alone. This message board does not constitute medical advice. Consult your physician for medical advice.
Insurance may not pay for filling removal so I have to wait...
by DLO
until next year so the dentist told me yesterday.She said the ins. companies usually do not like to pay for the composite fillings(white ones). That's what they replace the mercury ones with.
I am anxious to have them removed.*sigh
Coalition of Americans against Mercury...War has been declared....
by Stacie
Coalition of Americans against Mercury
URGENT COMMUNICATION -
Please forward this to all on your e-mail and fax broadcast lists..
War across the nation has been declared. Environmentalists, health professionals, scientists and attorneys have united. At a News Conference scheduled for April 24, in Washington D.C. science will be presented and legal initiatives across America will be announced, that promise to dwarf the tobacco industry lawsuits.
Doctors, dentists, lawyers and citizens rights groups are being asked to join in support of the Coalition of Americans against Mercury today!
It's your health, your environment and your children's futures at stake.
We need a strong voice for April 24th New Conference in Washington D.C.
Experts from across America will be in attendance and represented to address all questions. Full media kits with legal documents and supporting science and reports will be available for all attending media.
One trillion dollars is one estimate to have mercury fillings replaced with safer materials, in every American who was deliberately deceived and not made aware of the potential dangers of mercury dental fillings. Add to this the damage to health by mercury fillings, vaccines containing mercury, to damages for declining real estate values due to mercury spills and to the environment by industry and our dental professions and you begin to see the scope of the damages to be recovered.
Americans have always come to the aid of others in a time of need. Whether it was to defend, or to provide to those less fortunate in times of disaster.
Now, America faces a new enemy; a disaster that has been in the making for many, many years, right under your nose. This foe you cannot see, taste or smell. It carries no gun but it is deadly. It has no organized strategy but it attacks. It has invaded your food, your personal care products, your medicines, and your environment. It has poisoned your fish, contaminated your schools, contaminated your air and harmed your children. While you are slow to anger America – you are quick to act. The time to act is now, to defeat this insidious enemy. Your enemy America, is mercury. That metal that you played with in chemistry class, that metal that your dentist put in your teeth, that metal you watched rise in the thermometer when you checked your temperature. That metal is poison.
I’m sure you never imagined all those years as you recited the Pledge of Allegiance to your Flag, when you promised to protect and defend against all enemies, both foreign and domestic, that it would include an enemy you could hold in your hand. But here we are in the 21st century, being undermined and poisoned by a naturally occurring metal from Mother Earth. However, "Mother" is not the culprit – it is once again our fellow man. It is man who has imbalanced nature by mining, manufacturing and looking for easy, cheap ways to meet their goals. Mercury provided an end to a means, a money making venture – but it is we, the American people, our children and future generations who are paying the price.
Who will come to our aid? The rest of the world is also under attack by this enemy. Many countries recognized the war long before we did and began counter measures to defeat this common enemy. Switzerland, Sweden, Germany and Canada all have instituted restraints against the use of mercury.
Our own EPA has issued reports to Congress warning of the dangers to human health from mercury. But our government leaders turned a deaf ear and the invasion continued. The FDA flexed their power over the industries under their jurisdiction to have mercury removed from over the counter products – but it is not enough. We the people - "Americans against Mercury" in order to "preserve" this union we have created, must now come to our own aid to defeat this killer.
Scientists from around the world have studied mercury in all its’ forms. They have documented its effects on human and animal health. The reports are there – but who is reading them? Usually the people, who have already been poisoned, robbed of their health, their livelihood and years of their life. They are angry – and worse – they are too sick to mount a defense. They spend all their time and resources trying to get well. They try desperately to tell their story – but people won’t listen because it isn’t affecting them. – Or is it? Are you next? Will it affect you now – next year? Or maybe the affects won’t be apparent until you’re in your golden years when it affects your mental faculties, robbing you of your "golden" years.
We, "Americans against Mercury" do not believe the industries that make money from mercury over the scientists of the world.
Sign up today….
To join, please fax or e-mail your letter to us today, telling us that you are an American against Mercury. Please include name, address, e-mail and contact numbers.
If you are a practicing lawyer, physician or other professional who provides services that support the ban of mercury use, or that help those affected by mercury, please include the information above in addition to brief details and we will contact you directly.
Citizens Rights Groups, health, environmental and other organizations signing on to this initiative, please include your name with confirmation that you are in fact a signing officer, mandate of your organization, and the number of members you represent.
Any group wishing representation or to participate at the News Conference, please respond with details.
Letters and all other information should be sent immediately by e-mail to: communications@talkinternational.com or by fax to the Coalition of Americans against Mercury at (705) 789-9066.
Doctors wishing to work together with other doctors across the North America to provide better access for North Americans to integrative health care, please call Wayne Obie, Media & Public Relations for the Coalition of Americans against Mercury at 1 (800) 540-0192.
son's hair test shows high mercury. Chelation scares me. Help
by
Hello everyone, I am new to this list. I recognized some names from another board. Happy to join here! My son Björn is 6.4 and we live in Sweden. I had him on a GFCF diet for 9 months with no great improvement. I decided to test him at DDI for metal toxicity to see if chelation could be an issue for him. This is what we got back:
Total Toxic Representation: 99 th percentile
Mercury 0.84 <0.4
Lead 4.0 <1.0
Aluminium 8.8 <8.0
Antimony 0.099 <0.066
Arsenic 0.12 <0.08
Nickel 0.42 <0.4
Tin 0.38 <0.3
How much poisened is he? Anyone had mecury on that level? Is Björn a good candidate for chelation? Whe shall we start? is it dangerous?
Thjank you so much for your answers.
Fatima
I have posted the "Counting Rules" for your reference. But, it looks to me that your son w
by Stacie
"The Counting Rules"
Written by Andy Cutler
INTRODUCTION: WHY HAVE "COUNTING RULES"
Mercury is taken up by the body tissues and held for longer or shorter times. The blood holds on to it for a few months, the brain forever, and the rest of the tissues are in between.
Thus in chronic poisoning, or long after an exposure (such as from vaccines) some tissues have very little mercury in them. Other tissues may still have plenty and be well poisoned.
Unfortunately, most medical tests sample tissues that don't hold on to mercury very long. Because of this, measuring mercury in blood, urine, hair or feces is often not helpful in determining whether a person is poisoned.
The way to tell if a person is poisoned when mercury doesn't show up in the readily accessible things people will let the doc have some of is to test those accessible tissues for the biochemical abberations mercury causes. Since mercury impairs mineral transport, examining hair for the level of many essential elements lets us determine if mercury has left its signature in the hair's biochemistry even if the mercury itself doesn't show up.
ABOUT TEST RESULTS, IN GENERAL
Medical laboratory tests are standardized by testing a bunch of normal, healthy people and determining "normal ranges" where 1 person in 40, on average, is above them and 1 in 40 below, for a total of 2 in 40 or 1 in 20 who do not fall "within normal limits."
Of course, with this statistical definition, this means that if you do eight gazillion tests in some mondo test panel, some of them are expected to randomly be out of range. The Doctor's Data hair element analysis is in effect one of those mondo test panels, like a "chem 25" blood test panel. While it is extremely difficult to go look at the myriad interrelationships of all the things on these panels (and in practice nobody does it), it is possible to use statistical methods to turn the whole panel into "one test" that is either "within normal limits" or "abnormal." I have done this and generated the following rules to interpret the DDI "essential and other" elements portion of their test which includes 23 elements. For tests including a number of elements different than 23, the rules have to be rederived.
HOW TO READ A HAIR TEST FROM DDI
If any of the following rules are met, the test is "abnormal" for mineral transport and suggests heavy metal toxicity. These rules are ONLY for the Doctor's Data test - tests by other companies need different rules. I highly recommend using the DDI test.
Count the number of results that are above "average," that is above the 50th percentile line in the middle of the page and the bar extends to the right instead of to the left.
Count the number of results that are all the way to either edge of the page, "very elevated" or "very low."
Count the number of results that are in the middle band of the page, with a short bar, and are neither "elevated" nor "low."
The result is abnormal and suggests heavy metal intoxication if any of the following criteria are met:
The number of essential elements "very elevated" and "very low" is 4 or more.
The number of essential elements entirely inside the middle band is 14 or less.
The number of essential elements above average is EITHER 5 or less OR it is 18 or more.
If any ONE of these criteria is met, the test result is abnormal.
If any one (or more) of these criteria are met, there is a 1 in 44 chance that it happened randomly and a 43 in 44 chance that something is wrong. Of course, the chances that it is random diminish rapidly as the deviation departs from the minimum listed number, just as the chance that a result on a blood test, say for the liver enzyme ALT means something if it is 300 points above normal instead of 3 points above normal. (since you can't count, say, 5 and a half tests out of 23 doing it this way I couldn't make it exactly 1 in 40 so I made it as close as I could).
ADDITIONAL PATTERNS WHICH ARE CHARACTERISTIC OF MERCURY TOXICITY
There are some characteristic nonstatistical findings, too, in mercury toxic people that I thought I would mention. These are probably caused by more heavy metals than just mercury, but are NOT caused by COPPER toxicity - copper toxic people with nothing else going on have very normal looking hair analyses except for very elevated copper. Not everyone has these but they are reasonably common:
Typically, the calcium is vastly elevated. Usually the lithium is very low, too.
Sometimes there is a really characteristic pattern of Ca and Mg very high with Na and K very low. This isn't present in many cases but is common enough to mention since it is strongly diagnostic.
The most important finding is a bit difficult to describe, but if you look at the hair analyses of some "normal" people it is quite obvious by eye - mercury toxic people have their essential elements much more scattered than well people. Lots of highs and lows.
HOW TO READ A HAIR TEST FROM GREAT SMOKIES
The GSDL hair element analysis is interpreted by counting the number of "abnormal" highs and lows (way at the edges of the little bell curves on the test result sheet) for the nutrient elements + the additional elements. This gives 21 elements considered.
The number of results above "average" is also counted by drawing a line down the middle of the column with a ruler since there is no appropriate marking on the page. Do this carefully.
If the number of abnormal highs plus abnormal lows is 3 or more the test result is overall abnormal for mineral transport (and positive for mercury or other poisoning).
If the number of elements that are above average (above the line you drew down the middle) is not between 6 and 15 (that is, if it is either less than 6 or greater than 15) then the test result is overall abnormal for mineral transport (and positive for mercury or other poisoning).
This information is provided so you can interpret the GSDL hair test if you happened to get one. If you are considering getting a test the Doctor's Data test is presented in such a way that it is more useful, and it is also less expensive. Thus the DDI test is a better choice if you are offered one. But if you already had the test, or don't have a choice this is how to interpret the GSDL hair elements test.
APPENDIX
For those who like numbers and equations, the way I did this is pretty simple.
The probability of a given number of event "A" and event "B" where "B" is "not A" out of n tries is:
Pa ^ Na * Pb ^ Nb * 23CNb
(23CNa = 23CNb since Na + Nb = 23)
where Na is the number of events A and Nb is the number of events B, and Pa and Pb are the probabilities of events A and B. Pa + Pb = 1.
So I could calculate this for all Na and sum the probabilities up from, say, zero to some number. What I did was calculate probabilities and add them up so the total probability of satisfying the counting rules given above is 0.023 (2.3%) and all the the 3 different things I check have similar probabilities of occurrence.
The probability, Pa, of something being "very elevated" or "very low" is defined by the "normal limits" of a medical test as 0.05.
The probability, Pa, of something being within one standard deviation of average (in the middle band on the DDI test report) is defined by statistics as 2/3.
The probability, Pa, of something being greater than average, is of course 0.5 or 50%.
Fatima: do you know about the autism-mercury group?
by Vicky
It is a great group to join and you can get a lot of help. Your sons results looks very toxic. You might want to look into chelation. Do you have Andy Cutler's book on chealtion. It is very helpful to understand the effects of mercury in your body. Also, you will read a lot of stories of children making wonderful improvements. You are not alone. This and other groups will help to answer your questions. Vicky
Thank you for your information Vicky. What is the title of the book? Is it possible to order it via amazon.com?
I will definitely look into chelation for Björn. I had his hair tested at DDi via The Great Plains Laboratory (because when one lives outside the US, one can order tests without the signature of a doctor). I had a phone consultation with GPL after I received the resuts. They said that it is absolutely worth pursuing.I plan to learn as much as possible about chelation therapy and may be start in summer. I have been told that doctor Bradstreet works with a lot of families overseas. I will check the situation within this field in Sweden as well.Iam going to join the autism-mercury group. Fatima
Hello, I saw your post on the Autism/Mercury Board. Welcome aboard. It is a very informative board.
Andy will ask you to post the "essential elements" part of the test, he will be able to tell you more about your son's toxicity because mercury causes the "essential elements" to show a scattered pattern on the graph with highs and lows.
I saw your message on the Autism-Mercury posts. I think Dr. Bradstreet does chelatio. I can't remember now. Just post a question on the Autism-mercury web site. Vicky
Thank you for your posts. As you have seen, I found my way to the autism/mercury site. I have started to read the archives too, to get as much information as possible.
Fatima
Many people will walk in and out of your life,
But only true friends will leave footprints in your heart.
To handle yourself, use your head;
To handle others, use your heart.
Anger is only one letter short of danger.
If someone betrays once, it is his fault,
If he betrays you twice, it is your fault.
Great minds discuss ideas;
Average minds discuss events;
Small minds discuss people.
He who loses money, loses much;
He who loses a friend, loses much more;
He who loses faith, loses all.
Beautiful young people are accidents of nature;
But beautiful old people are works of art.
Learn from the mistakes of others
You can't live long enough to make them all yourself.
Friends, you and me.......You brought another friend....and we started our group....our circle of friends.....and like a circle.....there is no beginning or end......
Yesterday is history. Tomorrow is mystery. Today is a gift.
It's National friendship week.
Send this to everyone you consider a friend. If it comes back then you'll know you have a circle of friends.
WHEN YOU RECEIVE THIS LETTER, YOU'RE REQUESTED TO SEND IT TO 10 PEOPLE, INCLUDING THE PERSON WHO SENT IT TO YOU
> > > >>>
> > > >>> >
Before I was a Mom...
I made and ate hot meals.
I had unstained clothing.
I had quiet conversations on the phone.
Before I was a Mom...
I slept as late as I wanted And never worried about how late I got into bed.
I brushed my hair and my teeth everyday.
Before I was a Mom...
I cleaned my house each day.
I never tripped over toys or forgot words to lullabies.
Before I was a Mom...
I didn't worry whether or not my plants were poisonous. I never
thought about immunizations.
Before I was a Mom...
I had never been puked on
Pooped on
Spit on
Chewed on
Peed on
Or pinched by tiny fingers
Before I was a Mom...
I had complete control of my mind
My thoughts
My body I slept all through the night.
Before I was a Mom...
I never held down a screaming child So that doctors could do tests Or give shots.
I never looked into teary eyes and cried.
I never got gloriously happy over a simple grin.
I never sat up late hours at night watching a baby sleep.
Before I was a Mom...
I never held a sleeping baby just because I didn't want to put it
down.
I never felt my heart break into a million pieces When I couldn't
stop the hurt.
I never knew that something so small Could affect my life so much.
I never knew that I could love someone so much.
I never knew I would love being a Mom.
Before I was a Mom...
I didn't know the feeling of having my heart outside my body.
I didn't know how special it could feel to feed a hungry baby.
I didn't know that bond between a Mother and her child.
I didn't know that something so small Could make me feel so
important.
Before I was a Mom...
I had never gotten up in the middle of the night Every 10 minutes
to make sure all was okay.
I had never known the warmth
The joy
The love
The heartache
The wonderment
Or the satisfaction of being a Mom.
I didn't know I was capable of feeling so much before I was a Mom.
Send this to a someone whom you think is a special MOM!
Hi, everyone:
I have never posted any messages on this site. My name is Laura. I have a 3 1/2 yr. old son. His name is Noah. We are currently seeing Dr. Holmes. I have been reading up on chelation. I have a question for everyone. What happens to the mercury when you are chelating? Is it possible for the mercury to bind to other parts of the brain during this process? That is my fear. I do not want to cause further damage while I am trying to do something good.
Thank you,
Laura
It posts fast and their are some very experienced people here that chelate. I hope they respond too.
The ALA is given in tiny doses such as 12.5 mg. because of your fear. I'm not sure if it will actually bind in the brain somewhere else, or just cause damage on its way out. But I think the more you read on it, the better you will feel about chelation. Everyone recommends small doses. Less is more. The more you read other parents experiences, the better you will feel. I haven't read any horror stories. I have read where children react regressively when the ALA is added because the mercury is getting stirred up. But after, these same people report a rainbow of positives.
I was nervous about chelation too. But I look forward to it every weekend now. Good luck!! And please keep us posted. I love to read other experiences.
I too was scared of chelation. I began Daniel (age 7) on both DMSA and ALA both with very low doses. 12.5mg of each. My son's speach improves with each round. We get out low amounts of metals but I don't feel we are harming his liver or putting it under much stress as we might with the higher doses.
The first day was the toughest with regression because of stirring up the merc. He had a very short attention span and was very, very busy. But that has leveled off. He does have some regression between rounds which seemed to be helped with Epsom salt baths and MSM. (for the sulpher).
As for moving the mercury to the brain. My therory on that is "if it can be moved once, it can be moved again and eventually pulled out". There is a risk with anything you may try. But, I feel the positive aspect of eleviating my son of his toxic burden overrides any fear I may have of moving the mercury into his brain. That is also one of the reasons I am using such low amounts of the combination.
Hope this is helpful and best wishes for you and your son.
Hello Laura (again) I pulled this off the Autism/Mercury board, maybe it will help.
by Stacie
* The answers are from Andy Cutler. (he has successfully treated himself from chronic mercury toxitiy.)
> Hi,
>
> Can someone summarize the possible side effects using DMSA/ALA?
>
> Here are what I know,
>
> 1. Mercury may be pushed into brain.
A risk that is minimized by following the every 3-4 hour
administration protocol, and by avoiding ALA for a few months if there
has been recent exposure.
> 2. Minerals may be extracted from body while extracting mercury.
Incorrect.
> 3. Harmful things (different heavy metals) may get into liver or
kidney.
The kidney is safe. ALA affects body levels of copper and zinc, so
using very large quantities for a real long time can overload the
liver with those.
> Is this right or something else?
ALA also raises gluathione and cysteine levels, which can be very
unpleasant for people already high in them.
He has been having trouble with his eyes tracking together (has bells palsy - birth injury), balancing, he tends to walk to the right or leaning on walls. He has been doing an awful lot of spinning around - acting dizzy, jumping. (and his doc wanted to put him on meds - I told him that I wanted to try this first and I got his blessing!)
OMG. The difference in one two hour "treatment" is amazing. He cooperated! Told her when it was working. And she felt the fluid move as he told her. It was absolutely incredible.
His pupils have become smaller! (I haven't figured out this one yet) His eyes are tracking together. He can walk a straight line again.
...and she showed me how to work with him. While I was working with him there - he held eye contact longer than he has iin months! and said "I love you mommy. This feels so good!" While Janet was holding his neck and he was lying down - he held her gaze and said "You are a nice lady". He has NEVER told anyone anything like that! I left the room and cried.
I had no reservations about trying this because I knew it was or should be a very gentle approach to healing.
How did I find her? um. (how do I put this? lol)... I have a freind who is a bigger hippie than I am and she took her children to Janet. So, she came highly reccommended.
Janet has been practicing for 23 years. She began when she adopted a little boy (age 3 at the time) with autism. I met him yesterday. He is wonderful young man in college.
I posted a little bit a while back, then lost the address. Well, I found you again so I'm back to annoy with more stupid questions! We're in limbo right now to begin chelation. Still waiting for hair result.
First thanks to all of you who have responded to my questions...I have a supplement question...
by DLO
These are the ones I have so far...
Ester C, Melatonin, Flax Seed Oil, B-12 and another b complex and a non-toxic iron supplement from Sundown vit's. I almost bought Selenium but it has yeast. Is this yeast ok?
I have no idea how I am going to mix all of these supplements. Some of them are in tablet form.
Maybe I would be better off with a multiple vit of some sort.
My son takes a ton of supplements and I just open the capsules or crush them into powder and mix them with a little jello. He doesn't like it, but he eats it. I have yet to find a substance that I can mix them in and he WILL enjoy. Good luck!!
Kirkman's--
Mult. Mineral Complex Pro-Support
Mult. Vitamin Pro-Support (for days off chelation)
Chelation Aid Pro-Support
Milk Thistle
Coromega (Cod Liver Oil)
TMG
acidophilos
On the days on chelation I substitute the Vitamin Pro-support for AllergyResearchGroup Multi-Vi-Min without copper and iron from www.nutricology.com (because I don't want the DMSA binding to the iron instead of the mercury--my own little quirk)
I was so anxious to start the first round, I didn't preload vitamins properly. I gave him too much at once and it made him very sick. So I had to wait for him to get better before I could start again. I started with the 3 days on 11 days off protocol. So, I was so anxious to start, I just did. The first weekend I chelated with DMSA only. He was getting the vitamins that his body was used to getting and maybe a few more from over the counter that the DAN protocol recommended. Then I went through and bought alot of the supplements separate. This was a problem because there were so many pills and it was hard to get them all in him. So I went through Kirkman's because they have the supplements designed in the right doses and I don't have to do as many pills, or I will not be successful. Now he is getting all of his supplements and I feel better. So I switched to the 3 days on and four days off, so I could chelate every weekend. It is hard, but the every other weekend chelation didn't seem necessary. My son seems healthier than ever. His energy seems more consistent than it ever did before. (before he seemed lethargic, then hyperactive, then lethargic, etc.) If he starts to seem taxed in any way, I will go back to the 3 days/11days.
Food absorbs aluminum from aluminum pots and pans. I found this website that sells cast iron cookware. It is supposed to be better for you. The food that you cook will be enhanced with iron instead of aluminum and you won't have to supplement separate for anyone in the family. (my son won't take any supplements with iron taste)
I've been looking for an alternative for awhile, since iron supplements are recommended for chelation. (DMSA binds to iron, as well)
I called the dentist about my amalgam fillings. She told me...
by DLO
they could remove them if they weren't too big. They still use the amalgam fillings. I didn't know that. We are in California. I have a mouth full of these fillings and want them removed. If I can't get this procedure done what would happen if I chelate myself anyway?
Fortunately my kids haven't had any cavities so far and I am going to insist on a different type of filling when and if they do get a cavity.
If you don't get them removed and start chelating, I believe that the chelation can draw the mercury from your fillings (where they are away from you cells) into your body. If it gets drawn into your body, you could get really sick or more sick. At least that is what I've read. The more I learn about chelation, though I wonder if this would happen or someone is surmising that this could? I don't know?
In Limbo just had hers removed on Thursday. She posts regularly on this board. I am hoping she will give a full report when she can. I hope it wasn't too painfull. Her children are small and she is chelating her youngest, so she keeps very busy. But she will also be able to tell you the specifics.
Here is a list of mercury-free dentists that might be able to help you if your doctor cannot.
ALT Inc. 235 Bolivar Street, Lexington, KY 40508
Telephone: (859) 388-9445 & 388-9345, FAX: (859) 388-9645
UNITED STATES
Alaska
Dr. Burton Miller (907) 277-2600 Anchorage AK
Dr. Roger Eichman (907) 780-4065 Juneau AK
Dr. John D. Walsh (907) 561-2475 Anchorage AK
Arkansas
Dr. John Sinclair (870) 426-3664 Omaha AR
Arizona
Dr. Stephen Baer (520) 282-2482 Sedona AZ
Dr. Bruce Granath (520) 284-3851 Sedona AZ
Dr. Stanley Farnum (520) 721-7874 Tucson AZ
Dr. Richard Flores (520) 790-1111 Tucson AZ
Dr. Steven Swidler (602) 743-7101 Tucson AZ
Dr. Edward Fritz (602) 830-3305 Mesa AZ
Dr. Alan Noelck (602) 935-1155 Litchfield Park AZ
Dr. Terry Lee (602) 956-4800 Pheonix AZ
Dr. Nicholas J. Meyer (480) 948-0560
California
Dr. Gary Verigin (209) 838-3522 Escalon CA
Dr. Chester Yokoyama (213) 481-2625 Los Angeles CA
Dr. Ryan Farnum (213) 624-4151 Los Angeles CA
Dr. James Rota (310) 208-4297 Los Angeles CA
Dr. John Pavel (408) 297-2300 San Jose CA
Dr. James Adams (408) 356-8146 Los Gatos CA
Dr. Richard Evans (408) 371-4050 Los Gatos CA
Dr. Edward Arana (408) 659-5385 Carmel Valley CA
Dr. Timothy Gallagher (408) 739-9050 Sunnyvale CA
Dr. David Nyle (408) 972-2100 San Jose CA
Dr. Stephen Smith (916) 273-4442 Grass Valley CA
Dr. Fredrick Howe (916) 334-1730 Carmichael CA
Dr. Fredrick Howe (916) 334-1730 Carmichael CA
Dr. James Hastings (916) 626-4800 Placerville CA
Dr. David Mercer (916) 652-5424 Loomis CA
Dr. Gary Rawlinson (916) 784-9191 Roseville CA
Dr. S. Eccles (510) 447-6428 Livermore CA
Dr. Kirk Youngman (510) 837-3101 Danville CA
Dr. Michael Olmstead (619) 259-2552 Del Mar CA
Dr. Javier Morales (619) 422-8805 San Ysidro CA
Dr. Dennis Ferrara (619) 459-3212 LaJolla CA
Dr. Grant Layton (619) 756-1157 Rancho Santa Fe CA
Dr. William Domb (909) 981-6400 Upland CA
Dr. John Grill (818) 701-0388 Northridge CA
Dr. George Meinig (805) 646-3096 Ojai CA
Dr. Stephen Lawrence (760) 729-9050 Carlsbad CA
Dr. Richard Hansen (714) 870-0310 Fullerton CA
Dr. Allen Liles (707) 537-1517 Santa Rosa CA
Dr. Scott Loman (415) 326-3290 Redwood City CA
Colorado
Dr. Robert McFerran (303) 237-3306 Lakewood CO
Dr. Scott McAdoo (303) 393-0039 Denver CO
Dr. Stephen Koral (303) 443-4984 Boulder Colorado
Dr. Bob Jones (303) 693-5019 Aurora Colorado
Dr. James Kennedy (303) 773-3696 Littleton CO
Dr. Robert Wurtzebach (303) 969-8989 Lakewood CO
Dr. Hal A. Huggins (719) 548-1600 Colorado Springs Colorado
Dr. Walter Clifford (719) 550-0008 Colorado Springs Colorado
Connecticut
Dr. Thomas Duplinsky (203) 287-8570 Hamden CT
Dr. Mark Breiner (203) 799-6353 Orange CT
Dr. Lynne Epstein (220) 377-2885 Statford CT
Florida
Dr. Milton Mcllwain (407) 293-3185 Orlando Florida
Dr. Kenneth Mogell (407) 394-9000 Boca Raton Florida
Dr. Franklin Ward (407) 855-7380 Orlando Florida
Dr. Fredda Rosenbaum (305) 933-3350 N. Miami Beach Florida
Dr. Richard Keller (954) 473-5020 Plantation Florida
Dr. Mel Livemois (954) 772-0842 Ft. Lauderdale Florida
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Michigan
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Dr. David Regiani DDS, (810) 627-4934 Ortonville MI
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Minnesota
Dr. Dwight Tschetter (612) 475-1101 Minnetonka MN
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Montana
Dr. Douglas Delaney (406) 543-8347 Missoula MT
Nebraska
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Nevada
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New Hampshire
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New Jersey
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Dr. Jeffrey Oras (908) 534-5140 Whitehouse Station NJ
Dr. John Tortora (908) 721-0210 S. Amboy NJ
Dr. Paul Gilbert (732) 254-7946 East Brunswick New Jersey
Dr. Philip Memoli (908) 464-9144 Berkely Heights NJ
New York
Dr. Elmira Gadol (212) 501-7177 New York New York
Dr. Marshall Dicker (212) 962-7565 New York New York
Dr. Reid Winick (212) 973-9425 New York New York
Dr. Dave Lemer (845) 265-9643 Cold Spring New York www.holisticdentist.com
Dr. Susan Viosko (914) 277-3518 Brewster New York
Dr. Robert Kulacz (914) 277-3518 Somers New York
Dr. Bruce Sorrin (914) 338-7200 Kingston New York
Dr. Howard Hinden (914) 357-1595 Suffern New York
Dr. Steven Gould (914) 357-3050 Suffern New York
Dr. Norman Bressack (516) 221-7447 N. Bellmore N.Y.
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Dr. Krystna Wolski (516) 484-5871 Roslyn Estates New York
Dr. Eugenia Rosenthal (718) 377-2908 Brooklyn New York
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Dr. Michael McGrath (315) 478-5719 Syracuse New York
New Mexico
Dr. Leah Lauren (505) 271-9808 Albuquerque New Mexico
Dr. Bill Wolfe (505) 292-8533 Albuquerque New Mexico
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Dr. Wallace Brunson (505) 988-1616 Sante Fe New Mexico
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North Carolina
Dr. Robert Kulp Jr. (910) 760-8700 Winston-Salem NC
Dr. Michael Fleming (919) 383-0343 Durham NC
Dr. Phil Davis (828) 250-0020 Asheville NC
Ohio
Dr. Terrance Messerman (216) 605-9005 Lydhurst OH
Dr. Louis Carratola (419) 929-1544 New London Ohio
Dr. Donald Fricke (513) 293-1012 Dayton Ohio
Dr. Richard Quinttus (513) 435-0324 Dayton OH
DR. Richard Chanin (513) 729-2800 Cincinnati OH
Dr. William Westendorf (513) 923-3839 Cincinnati OH
Dr. David Ball (614) 775-5544 Chillicothe OH
Dr. John Johnson (614) 882-8110 Columbus Ohio
Dr. Roger Veith (614) 888-0377 Worthington OH
Dr. Jon Pensyl (614) 888-0377 Worthington OH
Oklahoma
Dr. Robert Talley (405) 321-8030 Norman OK
Dr. William Elkins (918) 438-2273 Tulsa OK
Dr. G. Colpitts (918) 492-9420 Tulsa OK
Dr. Jim Maxey (918) 742-2424 Tulsa OK
Oregon
Dr. Jeffrey Williamson (503) 684-4174 Lake Oswego OR
Pennsylvania
Dr. Andrea Brockman (215) 482-6676 Philadelphia P.A.
Dr. Michael Pawk (412) 285-3305 Butler P.A.
Dr. Philip Plottel (412) 741-5026 Sewickley PA
Dr. Kem Moser (610) 444-6300 Kennett Square PA
Dr. Anthony Roeder (610) 647-7272 Paoli PA
Dr. Kenneth Fordham Sr. (610) 688-1300 Radnor P.A.
Dr. Blanche Grube (717) 343-1500 Scranton PA
Dr. Peniti Nupponen (717) 896-3911 Halifax PA
Dr. Edward Spiegel (814) 833-1516 Erie PA
Rhode Island
Jean Arthur (401) 861-2124 Providence Rhode Island
South Carolina
Dr. Andrew Adams (864) 226-6278 Anderson SC
Dr. John Tate (864) 582-4441 Spartanburg SC
Texas
Dr. William Glaros (281) 440-1190 Houston Texas
Dr. Joseph Perry (361) 358-9780 Beeville Texas
Dr. Daniele Rosen (361) 472-3565 Austin Texas
Dr. Charles Warlick Jr. (361) 847-3556 Wimberley Texas
Dr. Don Lowrance (361) 851-8274 Corpus Christi Texas
Dr. Michael Jackson (817) 293-7431 Fort Worth Texas
Dr. Allen Sprinkle (817) 461-9998 Arlington Texas
Dr. Stacy Cole (817) 731-9291 Ft. Worth Texas
Dr. Stephen Evans (903) 597-6408 Tyler Texas
Dr. Marilyn Jones (713) 977-1010 Houston Texas
Utah
Dr. Marc Flack (801) 268-4941 Salt Lake City Utah
Dr. S. Peay (801) 295-5131 Bountiful UT
Vermont
Dr. John Liscio (802) 658-4873 Colchester VT
Virginia
Dr. Wayne Whitley (540) 371-9090 Fredericksburg VA
Dr. Richard Fischer (703) 256-4441 Annandale VA
Washington
Dr. Paul Rubin DDS (206) 324-1100 Seattle WA
Dr. S. Buck (206) 324-1100 Seattle Washington
Dr. Michael LaMarche (206) 344-4087 Lake Stevens WA
Dr. Robert Feasel (206) 362-5400 Seattle WA
Dr. Craig Brandon (206) 362-5400 Seattle WA
Dr. Mitchel Marder (206) 367-7453 Seattle WA
Dr. Runar Johnson (206) 455-1583 Bellevue WA
Dr Leonard Estes (206) 473-2166 Tacoma WA
Dr. Debra Hopkins (206) 475-2160 Tacoma WA
Dr. Alan Mackenzie (206) 838-2055 Federal Way WA
Dr. Frank Kitamoto (206) 842-4772 Bainbridge Island WA
Dr. Thomas Dorman (206) 854-4900 Kent WA
Dr. Robert Stephen (509) 325-2051 Spokane WA
Dr. Craig Christian (509) 946-3575 Richland WA
Dr. Steven Harrop (509) 996-2293 Winthorp WA
Dr. Russ Bomeman (360) 293-8451 Anacortes WA
West Virgiania
Dr. G. White (304) 485-4551 Parensburg WV
Dr. Jeanne Bailey (304) 757-7428 Hurricane WV
Wisconsin
Dr. Steven Canini (414) 284-2662 Port Washington WI
Dr. Alan Spaeth (414) 463-1956 Milwaukee WI
Dr. John Moser (414) 781-4422 Brookfield WI
Dr. Douglas Cook (414) 842-2083 Suring WI
Dr. Ronald Underdale (715) 394-9450 Superior WI
Dr. John Schacherl (608) 845-6127 Verona WI
CANADA
Alberta
Dr. Andras (403) Calgary Alberta
Dr. Fairbanks (403) Calgary Alberta
Cameron Maclean (403) 229-0097 Calgary Alberta
Dr. David MacLean (403) 229-0097 Calgary Alberta
Dr. Aaron Rynd (403) 233-7616 Calgary Alberta
Dr. Michael Komlodi (403) 262-1775 Calgary Alberta
Dr. Murray Vimy (403) 266-2158 Calgary Alberta
Dr. Thomas Evans (403) 286-2622 Calgary Alberta
Dr. Dale Rustebakke (403) 652-2131 High River Alberta
British Columbia
Dr. Hugh Thomson (250) 374-5902 Kamloops B.C.
Dr. Reiver (250) 562-5551 Vancouver B.C.
Dr. Madeson Basie (604) 222-8292 Vancouver B.C.
Dr. Rex Fortescue (604) 224-3288 Vancouver B.C.
Dr. Peter Brawn (604) 320-7252 Burnaby B.C.
Dr. Rico Ricketts (604) 736-4535 Vancouver B.C.
Dr. Ara Elmajian (604) 876-9228 Vancouver B.C.
Dr. A. Gorrel (604) 943-2291 Delta B.C.
Dr. A. Gorrell (604) 943-2291 Delta B.C.
Dr. Robert Lee (604) 943-4182 Delta B.C.
Manitoba
Dr. Randy Dawson (204) Winnipeg Manitoba
Dr. Kimelman (204) Winnipeg Manitoba
New Foundland
Dr. Marie McKnight (506) 634-7212 St. John Newfoundland
Ontario
Dr. Gary Fortinski (416) 225-1352 Toronto Ontario
Dr. Walter Pressey (416) 225-4169 North York, Ontario
Dr. Michael Rozeluk (416) 256-1717 Scarborough Ontario
Dr. Ken Wolch (416) 281-4746 Scarborough, Ontario
Dr. Jim Argyropoulos (416) 293-4119 Scarborough Ontario
Dr. Robert Polese (416) 293-4119 Scarborough Ontario
Dr. Minaz Karin (416) 444-1169 Don Mills Ontario
Dr. Robert Yansy (416) 447-4401 Toronto, Ontario
Dr. Dana Colson (416) 482-2133 Toronto, Ontario
Dr. Mohsen Assaad (416) 482-7000 Toronto, Ontario
Dr. Richard Goodfellow (416) 661-6116 Downsview Ontario
Dr. William Slade Prussin (416) 751-4842 Scarborough Ontario
Dr. Barry Rubinoff (416) 922-2668 Toronto, Ontario
Dr. Michael E. Heti (416) 923-1800 Toronto, Ontario
Dr. Vera Veradi (416) 964-2255 Toronto, Ontario
Dr. Saldanha (905) Brooklin Ontario
Dr. Oksana Sawiak (905) 279-3501 Mississauga, Ontario
Dr. Bergen (905) 468-2128 Virgil, Ontario
Dr. George Freedman (905) 513-9191 Markham Ontario
Dr. Ken Southward (905) 563-4001 Beamsville Ontario
Dr. Ron Scott (905) 563-4001 Brantford Ontario
Dr. Hans Schwartz (905) 642-1303 Stouffville Ontario
Dr. Gary Kotack (905) 728-7381 Oshawa, Ontario
Dr. Brian McLean (905) 896-1122 Mississauga Ontario
Dr. Gerald Ross (905) 936-4663 Tottenham, Ontario
Dr. Michael Cohen (905)637-0801 Burlington Ontario
Dr. Christopher Tsang (905)727-5522 Aurora Ontario
Dr. Leon Tregger (906) 660-5129 Concord, Ontario
Dr. Trevor Lyons (613) 236-2233 Ottawa Ontario
Dr. Trevor Lyons (613) 236-2233 Ottawa Ontario
Dr. Robert Chaplin (613) 264-0650 Perth Ontario
Dr. Janushewski (519) 426-2273 Simcoe Ontario
Dr. Warren Hilliard (519) 941-5341 Orangeville, Ontario
Dr. Robinson (705) Barrie Ontario
Dr. William Emery (705) 746-2772 Parry Sound Ontario
Dr. Jim Jenkinson (705) 789-9521 Huntsville Ontario
Dr. Richard Riley (705) 789-9521 Huntsville Ontario
Dr. Richard Smythe (705) 789-9521 Huntsville Ontario
Quebec
Dr. Sonia Lamontange (418) 336-3793 Bernieres Quebec
Dr. Francois A. Letourneau (418) 525-6200 Quebec City Quebec
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Dr. Benoit R. Tanguay (418) 681-3366 Sillery Quebec
Dr. Louis Gauthier (418) 688-0078 Ste.Foy, Quebec
Dr. Richard Gagnon (819) 228-9411 Louiseville, Quebec
Dr. Luc R. Daignault (819) 326-2441 Ste-Agathe Quebec
Dr. Gilles Pigeon (819) 563-1282 Sherbrooke, Quebec
Dr. Guy R. Rouillard (819) 566-2578 Sherbrooke, Quebec
Dr. Ronald Morin (819) 685-9499 Alymer Quebec
Dr. Mark Bonner (819) 691-1343 Trois -Rivieres Quest Quebec
Dr. Ghislain Dessurault (819) 770-8315 Hull, Quebec
Dr. Jean R. Sirois (819) 777-6061 Hull, Quebec
Dr. Julie R. Lafrance (819) 845-3080 Windsor Quebec
Dr. Denis Gozzi (514) 274-6343 Monteal, Quebec
Dr. Therese Nguyen (514) 288-4992 Montreal Quebec
Dr. Daniel A. Laramee (514) 288-5824 Montreal, Quebec
Dr. Carl Benoit dh (514) 336-8478 Montreal, Quebec
Dr. Daniel R. Godin (514) 344-9851 Montreal, Quebec
Dr. Yves R. Bouchard (514) 374-5950 Montreal, Quebec
Dr. Barry Faguy (514) 426-9397 Pie Claire Quebec
Dr. Raymond Richard (514) 446-1000 Beloeil, Quebec
Dr. Guy Duquet (514) 463-1262 Lonqueuil, Quebec
Dr. Francine Fournier Belanger (514) 492-1822 Terrebonne, Quebec
Dr. Dany Malaxos (514) 581-0833 Repentigny, Quebec
Dr. Slyvain Boies (514) 585-2002 Repentigny Quebec
Dr. Nicole R. Lavergne (514) 621-1361 Laval, Quebec
Dr. Alain R. Methot (514) 622-3030 Faberville, Quebec
Dr. J.R. Van Becelaere (514) 636-4090 Dorval, Quebec
Dr. Peierrette Krynski (514) 641-0482 Boucherville, Quebec
Dr. Alain R. St.Onge (514) 659-6561 Laprairie, Quebec
Dr. Andre Plouffe (514) 661-6100 Laval, Quebec
Dr. Nathan Bregman (514) 688-3311 Chomedey, Laval, Quebec
Dr. Richard R. Belanger dh (514) 744-6444 St-Laurent, Quebec
Dr. Pierre LaRose (514) 747-4949 St Laurent, Quebec H4M-2M4
Dr. Jean-Pierre R. Parent (514) 759-9088 Joliette, Quebec
Dr. Monique Martin (514) 762-6439 Ile Des Soeurs, Quebec
Dr. Michel Demers (514) 769-5167 Verdun, Quebec
Dr. Pierre Brassard (514) 939-0771 Montreal, Quebec
Victoria
Dr. Ben BDS (039) 572-1698 Glenhuntly VIC
Dr. Alan BDS 39 874-1798 Mitcham Victoria
EUROPE
Dr. Vincent Maiolini 0171-467-8410 London England
Dr. Patrick Engels (322) 648-2355 Brussels Belgium
DR. Philippe Knoff 00322-346-0232 Bruxelles Belgium
Dr. Henrik Litchtenberg (454) 225-5566 Hillerod Denmark
Dr. Erik Pederson (455) 627-6060 Herfolge Denmark
Dr. Kirsten Knudsen (457) 452-1181 Haderslev Denmark
Dr. Bruce Kyle (458) 628-9677 Viby Denmark
Dr. Graeme Hall 0211-133533 Dusseldorf
Dr. Rene Der Bijl 011-31-20-610-2883 Amsterdam Holland
Dr. Eriu VanLeeuwen 3120-668-5991 Amsterdam Holland
AUSTRALIA AND NEW ZEALAND
Dr. Geoffrey Benson 011-063-317877 Bathurst NSW
Dr. Roman Lohyn 03-6501660 Melborne VIC
Dr. Eric Davis 07-3284-5755 Margate Queensland
Dr. Jacques Imbeau (647) 578-5799 Tauranga Bay of
Dr. Michael Godfrey 64-75785899 Tauranga NZ
Dr. Asael Cohen 64-94387300 Whangarei NZ
Thank you for that list of dentists.:o) I live closest to the one in Escalon. If my dentist can't help I will give him a call.
Hope to hear from inlimbo.:o)
Why does chelation have to be every 3 hours instead of just twice a day every day?..Hi Shirley!:o)
by
What is the difference and why does it have to be 3 to 4 days on and off 3 to 4 days. It is confusing and I don't believe I will be successful in rousing both my kids especially my little girl. I am very new at this and am using ALA beginning this weekend if possible.
Hopefully some others more experienced in chelating will come and answer this too.
You don't want too much mercury coming out at one time, because it destroys cells. The cells that it can destroy can likely regenerate, but then, you can't count on it without help. Too much mercury coming out at once will shock the system. Some will make it out of the system, and other mercury might bind to other cells and attach there. Then you have done damage and the mercury still has not made it out. Did you watch that video clip? It will help clarify this. So small doses given frequently is how Dr. Andy recommends for ALA chelating.
Now, about not being successful??? I was doing the DAN protocol. Using what Dr. Amy Holmes tells one of her patients (on this board). I may be switching to Dr. Cutler's protocol instead. (the one that I posted for you) I've tried the 8 hour one, and I think I could be more successful with the small frequent doses. This is because with the 8 hour, I have problems with the night dose. I don't do too bad, but not as good as I want. And the 3 hour (or 4) protocol, the doses are so small, I think I can do the night time doses without waking him up too much. Especially, the ALA isn't as noticable as the DMSA. I think you can do it. Just be ready to stop if you miss a dose and start again. My first weekend of chelation was a flop, but I learned so much and the next time, I did so much better. But I didn't do damage. And you can lose skills that you have worked so hard for if damage is done.
I just got back from the store. I had to go to three different places and finally found lipoic acid at Walmart.:o)
In addition to that I bought milk thistle, b12, vit.c,
and melatonin 1/2 mg.(I know I am leaving out something)
I have started with the melatonin this evening as well as the b12.
I am very interested in the 8 hour protocol you were trying.
Do you know if the 3 hour protocol is for every cycle from now on? Does this ever change to the 8 hour dose eventually?
Thanks so much for all your help. I haven't gotten the download yet. I will try tomorrow. I don't have much patience with this old 'puter.haha
My son weighs 60 lbs and is 7. He is tall for his age..*grin...
by DLO
Anyway I read that the dose for dmsa and ala are the same. That is 1/2 mg of ala so it would by 30 mg per dose at every 3 hours. If my math is right I get 8 doses around the clock at 30mg and the total for all those doses is 240 mg in all.
The lipoic acid I found is 50 mg tablets so I am not sure how to make the dose 30 mg. This was the only strength I could find.
Thanks again Shirley for your help. Thank God for this board. :o))
I've read, time and time again, that DMSA dosage should not exceed 1mg per pound and ALA should be 1/8 th of the childs weight. If the dosage is lower then that is O.K. but it is higher then you will most likely experience problems, unnecessarily. For ex: if the child weighs 80lbs then the ALA should be 8mg (every three hour-so says Andy) or less. The DMSA can be upto 80mg per 3 to 4 hr dosage. Andy also recommends that if you are doing both ALA and DMSA the dosages should be given every three hour. If you are just using DMSA then doing every four hours at night is O.K. but during the day you should do every three hour. Hope this helps. Vicky
For DMSA or LA, start with 1/8 to ½ mg. per pound of child. Is this incorrect?
It is from an article that I found that goes into detail about chelation. I posted the full article a couple of days ago at the gfcf board.
I began Daniel's chelation with both DMSA and ALA. but in very low doses. He gets 12.5 mg of each (Kirkmans Lowdose) every four hours. He weighs 54 lbs and is now 7 years old.
We are seeing metals exiting via urine tests. They are not in high amounts because I feel that it would put way too much strain on his body. I am very happy taking this very slow.
Daniel chelates beginning friday evening thru monday morning. When I run urine tests it is on Sunday. No test has come back with elevated amounts but many, many metals are coming out and he IS improving with each round.
they have a "care practitioner" area. You can type in your state and find the closest one to you and email for more information, or ask for it to be sent to your home. Here is a copy of my email to I sent out. I sent about 6 to start with to the least expensive and closest to me. I shall keep you posted if anything interesting comes. Feel free to copy and paste it for your own use.
Hello,
My son has autism from mercury poisoning from the thermisol in the vaccines.
(FYI: At Autism Research Institute there is a paper with mercury poison symptoms paired next to autistic characteristics. They are identical-at...http://www.autism.com/ari/mercurylong.html )
I am orally chelating him with DMSA and ALA right now. I recently saw clip on the damage that is done to the brain cells by mercury.
Now I'm wondering if I chelate my son, whether the brain will heal or if it will need help. So I am exploring the possibility of hyperbaric chambers.
I read some information about hyperbaric oxygenation for anoxic encephalopathy (equivalent to my son's autism) and a controlled clinical trial with autism subjects.
I have many questions.
1) how much is the cost per treatment?
2) how many treatments are recommended, or is there a recommended treatment schedule?
3) have you had any experience treating children with autism?
4) my son is six with autism, I question whether or not he will be too scared to get him in the chamber. Is there any special techniques you have?
5) are there any risks involved? What are they?
6) has your place ever had any reports of negative effects?
And any other information that you could give me, I'd be most grateful! Thank you and have a great day!
Mr. Shirl,
My name is Jana, I am a CHT working for Dr Paul Harch in Marrero, La (suburb of New Orleans).We are treating and have treated several autistic children, all with great success. I would like to answer your questions, but it would probably be easier to send you our information packet that we send to everyone inquiring about the off label use of HBOT. It goes into great detail explaining all aspects of our HBOT protocol. I can also provide you with a mother to contact in Baton Rouge LA., whose autistic child has just completed
her first 40 HBOT treatments. Her name is Tara Parish, her email address is Parishdarren@AOL.com. She is the LA representative for Unlocking Autism. I'm sure that she would be more than glad to share with you her own feelings about HBOT and what it did for her child (Ciera). I have been doing hyperbarics for the past 15 years, and since we began treating children (CP, Near drowning, TBI, Autistic and other various syndromes) I have seen the most changes in the child with autism. My only explanation to this observation is probably the fact that these children are more unable to handle social interacting due to all the stimuli they are
exposed to. Once they start HBOT, I have observed that they are more interactive with people, calmer and easier to control. As you know autistic children are individuals and even though they do have a common bond they are all different. Some more severe than others. We have treated this wide range...each and everyone improved. Some who were not talking are now beginning to speak. Those who would not interact now are playing with others. The changes are obvious. If you would like I would be more than glad to send you a packet. You could either email me with your name, address and phone number or you could call me at our facility and I would be more than glad to talk to you. You can reach me at (504) 348-4357. Best of luck to you.
Jana Knight, CHT.
Hi, Shirley, hyperbarics has done more for Ciera than the chelation therapy, we to have been doing this for the past two years. We are still watching her change due to the hyperbarics. We have medicaid so it paid for the brain spects and dr appts. The hyperbarics itself were $150.00 per treatment and 40 treatments cost $6000.00 this we had to take out a loan for. I believe that it is worth every penny, and hopefully we can have a fundraiser if Ciera needs the last 40 treatments. Dr. Harch and Jana have been a blessing to work with and any enjoyment I have in my life right now from Ciera I owe to them. Please give this treatment much consideration I find that it is worth
a try.
Tara
I don't mind if you post our names on the boards. Chelation therapy did not show much result but with hyperbarics we have seen an improvement in behavior
and her speech has increased 3 words, which is alot to us. She has better motor skills now to feed herself without making a mess. I am hoping still for more improvements.
Tara
Dear Eric,
I agree with the mercury problem. We use IV DMPS in mercury toxic patients with maldies such as MS to help the neuroilogical symptoms. As far as your questions.
1. Averages about $98 per treatment
2. In CP, 40-60
3. 1 child who improved. His mother, Beth Bowers, is head of the local autism society
4. We hav a TV right outside with VCR capability; Many of the children have a favorite tape that they want played. Parents or siblings can go into the tank with them. The tank is clear plexiglass.
5. No side effects have been observed. A ruptured ear drum can occur if kids have trouble with ears so some parents have tubes put in if that is a problem.
6. No Write MUMS for their compendium of papers on HBO and neurological disorders in children, If you are unaware of MUMS (Mothers United for Moral Support)
call Amy, myHBO tech 816-453-5940 and she will give you their address.
Dr Rudolph
Thank you for your interest in my center please call me at 215 643 1875 so we can speak at length regarding your son.
Patrick Finnegan
Finnegan Hyperbarics
Ft. Washington, PA
What is the age of your child that is undergoing chelation? Also, what dosage of DMSA are you using? I am beginning tomorrow, probably, with my son who is 8 years old and weighs 65lbs. He will be taking 300mg every 8 hours. It seems like everyone else is taking less.
and he is taking 100 mg every 4 hours. The bedtime dose, I double up, because I can't get him to take it at night very well. The 3:30 am dose is very difficult and I'm not sure if I'm getting it all in him. So, I double up the bedtime one so I only have to wake him up once. And the last dose before school, I double up and it is done. This way the school does not have to mess with it. At first when I began chelating, I wasn't very successful with getting the doses in him. But I am getting more creative and working out the kinks. Good luck to you!
My son will be 3yo in 2 weeks. He weighs 33 lbs. and is taking 125 mg. of DMSA every 8 hours - 3 days on/11 days off. And making excellent progress too. We have completed 5 rounds. Looking forward to round 6.
is 7. Well, just turned 7 in March. He weighs 52 lbs and is taking very low doses compared to everyone else. I have been giving him 12.5mg dmsa and 12.5 ala every 4 hours. I started him on this instead of the plain dmsa. Will up that to 25 and 25 beginning this weekend.
We are getting lots of metals out each round I test. They are in low amounts but some is better than keeping it all in there. I am noticing improvement with each round. After this past round he just started added adverbs into his speach! He has never done that before and yesterday evening used several. (yeah!)
I wanted to take it slow and not put a large burden on his kidneys or liver.
I've been e-mailing Andy Cutler and he suggested that I just double what Daniel is doing now. Instead of 12.5mg of dmsa and 12.5mg of ala, double the dose every 3-4 and see how that goes....
I'll give it a whirl for a while. Regression city - here we come!
maybe it won't be so bad. Your DMSA dose is very low. How old is Daniel? (curious)
I am very disappointed. When Troy got home from school, I had his snack ready to go, laced with his DMSA. And his appetite isn't there. This usually means he is sick. (Shirley--stomp, stomp, stomping around) Then he started eating some (he usually wolfs food after school) and he threw it up after 20 min. Makes me want to pull my hair out. We didn't chelate last weekend because he wasn't feeling well. Normally, he is never sick. So, I might have to abort mission and try again tomorrow or next weekend. We shall see.
It is kind of pathetic, but I look forward to my chelation weekends. (I live for them--lol) So this is very disappointing.
is 7. Yes, I know my dmsa dose is very low. Andy says that when you use both ala and dmsa together you don't need as much dmsa. Anyway, I started with both.
I'm going to give Daniel his dose and then we are going flower shopping. This should be interesting. I'll have Daniel and Michelle (4) with me... then we will coome home and plant some flowers. I have this thing for pansys and iris! lol.... Yard work - fun fun. while I'm doing that type stuff (with kids help) they always get to pick out some of their own flowers and have to repot them! When we are done with flowers - I've got strawberries and my herbs to plant!
Then I think it's a trip to burger king! Gonna keep him busy so the regression won't be too noticable and I plan on waring them out!!!! When we come back - I'm sending him to his basketball hoop - which he got last weekend for his birthday. He is so proud of that.
Maybe later in the afternoon - I'll take them up to the school with their bicycles and let them ride around for a while!
Sound good! I usually look forward to chelation weekends too - but since he hasn't done it a month.... oh boy!
That is so nice that you can do things like that together. When I plan to keep Troy busy like that, it always backfires on me. I get more worn out than him. lol But it still I think is better than sitting around the house. And maybe since you are active, the stimulation will off set the regression, if there is any. (ie stimulation=brain cells generating while regression=brain cells degenerating, or confused) I think you have it worked out very nicely. Hope you have/had fun!
here I was expecting laughing fits and temper tantrums because we haven't used the dmsa/ala mixture in a month and the only thing he did was talk a little louder. I was expecting him to be bounching off the walls! He was great.
He was happy, loving, helpful, polite. You couldn't ask for a better behaved little boy! He gave so many frequent hugs and kisses.
I told him at one point today that he needed to drink a lot so he would pee more because that's how the metals get out. And he ran to the sink chugged down and glass of water and went to the bathroom. Came out and said "I just got out more metals"... It was so precious!!!! My little character!
Anyway, did you get to chelate today? How did it go?
Well, I think Troy is playing the school. He came home and dramatically lay down on the couch. (dramatic for him) And normally he begins to "hunt and gather" when he comes home, unless I have his snack ready to go. Yesterday, I did have it ready, though. He just lay there. After I got some DMSA in him, he threw it up. He made himself, though. He is not big on throwing up. But the school babies him and doesn't make him work when he does. (I'm guessing) They sent a note home Thursday saying that they didn't brush him all day, because he just wanted to be held all day. And that they hope he feels better after he gets some sleep. ??? What is that? He got plenty of sleep the night before. They make deductions, reassure each other that they are absolutely correct, then make these statements to me, practically daring me to challenge their psychic abilities. Anyway--done venting about them.
After he threw up, I cleaned it and him up. And went back to washing the dishes to see what he would do. After about 5 min. or less, he was running around like he usually does. Then he ate his snack. So, I am chelating this weekend after all.
This morning he made a mess and was really dirty. I asked him if he wanted a bath. (he never does--just recently started taking them again--for 2 years I had to sponge bathe him) He grabbed my hand and pulled me to the bathroom. I filled it up and he got in and said, "simn simn simn simn simn", looking at me with his big brown eyes. I said, "oh sing?" (I was surprised--I do sing to him, but sometimes he doesn't seem interested) I started singing songs to him. He looked at me funny. I said sing? He repeated, "simn simn simn simn" I laughed and said, "Swim? Oh swim? Are you swimming?" he said, Ya. So I repeated that he was swimming for a while and he started ducking his head in the water. It was cute. And not typical. He has had more spontaneous language than he has for a while. And it the right context. He was VERY active though. Trying (and succeeding sometimes) to grab and dump everything out today. It has been hard keeping up with him today. I'm looking forward to see what tomorrow brings.
I think Troy is playing the school too! Smart little guy!
Troy likes swimming? Daniel won't go into our big pool. But he likes the small one I have on the deck for him. He puts the slide in it and has a great time. I don't really know why he doesn't like the big pool, but I'm not willing to push it. When he is ready he will come on in! He did dangle his feet in last year. Will see how this summer goes.
I'm going to the beach next weekend! Me and the three kids a girlfreind of mine and her two. Her daughter and my daughter have been "best freinds" since kindergarten (now 6th grade). And her youngest and Daniel play well together. No husbands! Just us and the kids!!!! Leaving thursday returning Sunday! Yeah - cant wait! Got a great house with a jacuzzi, and only 500 feet from the beach. Has bicycles - and close to the shops!!!! I can't wait!
You really deserve it! And your daughter and Daniel will have so much fun too! Having a special friend is really great for girls. My daughter is like that. She always has to have at least one special gal pal.
It don't look like it is going to be too bad weather wise. Might have some showers on Friday. Oh well. A rainy on the beach is better than a sunny day at home. I can't wait.
I'm taking off wednesday too! Gotta go to the dentist and put some new tires on my van.
Daniel did so well chelating this weekend... he was in such good moods all weekend! How did the rest of your weekend go?
much more attempts of meaningful language. Some echolalia. But since he's started with this school, he has had nearly no language. The speech path told me that he may never have any. (yet he had some) She only wants to work on PECs with Troy. I'm going to be taking him to another speech path that my insurance covers and see what she has to say. She has had alot of success with children on the spectrum. And she is a sister. (a nun)
He's been very happy all weekend. I love chelation. I'm thinking about switching to the 3 days on 4 days off schedule. What do you think? (or anyone else?)
Sending him to school is the hard part for me. He has been so reluctant getting on the bus. He looks at me like I'm betraying him everytime I put him on there. I hope he has a good day.
the three day on four day off schedule... But I start saturday morning thru Monday morning. Last dose was at 7:00 this morning.
I was just down at the school. Daniel is having a good day. Has been freindly with everyone. Seems to be having some vision sensitivity today. Oh well, I told them to allow him to wear his sun-glasses inside. This is nothing I didn't expect... got that stuff circlulating big time!
Reputable Docs that do chelation in Pennsylvania/New Jersey
by Judy M.
Any one doing chelation therapy in PA or NJ? I am interested hearing who you have found to be reputable.
Anyone chelating with Dr. Neubrander? I actually have an appointment in April for my son, but I have a really bad feeling about this particular doctor based on my telephone conversation with him. I'm curious to hear from anyone else who sees him.
My initial conversation with him on the phone sent up all kinds of red flags. We have been seeing Maureen McDonnell and a DAN doctor (M.D.) for over a year now, We have run batteries of tests already. At this point I am interested in Heavy Metals testing, so Maureen McDonnell referred me to Dr. Neubrander. He answered the phone himself, and told me he speaks to the parents of patients he "considers taking on." When I told him I was already following the DAN protocol, He told me that he "treats the whole child, and while it seems like I may be starting all over, I'm really not." His initial visit of $450 was steep, especially considering the fact that I am being referred by McDonnell, after we have already tried other interventions. I asked if he had other parents I might speak to whose children he has successfully treated, and gave the receptionist, (his daughter) my e-mail. I have heard from no one. The forms he send me to fill out look like a big fishing expedition (he wants every detail of my child's life). I don't need him to "find" something, I want tests that show something real and legitimate, and then I want to treat it. Over all I had a really bad impression. I'd love to hear your experiences with him, and how your child is doing.
I am so used to doctors not doing what they are supposed to do. I got used to going in and telling them what I needed and doing their homework for them.
The funny thing is, is that it sounds like this doctor is thorough and a really good doctor. I don't blame him for wanting to check everything himself, since he may have a "system" or he may actually be a responsible doctor. (so rare)
I wish I could go to him.
But I do understand how you feel. He should start where your other doctor left off. He should respect that you are tired and don't want to finance or spend the time re-doing things.
My DAN doctor wasn't very good. He wasn't up on any of the current things that the other DAN docs were doing. So we went to his old pediatrician who is absolutely fabulous with my daughter. But she is too mainstream for my son.
