Kids talk about parents or family with Cardiomyopathy and chf
This forum is so that kids can talk to other kids about family or parents with Cardiomyopathy and chf.It's here so that kids know that they are not alone but that there is others out there with the same problems.
Mom has cardiomyopathy
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Hello everyone. My name is Jesse. I am 11 years old. My Mom has cardiomyopathy. I live in Florida. I don't feel good about my Mom having a heart transplant. She is not going to have a heart transplant yet and I hope she is not going to.My Mom has a ICD and pacemaker. I hope she doesn't ever have to have it go off. I was gone at my Dad's in New Hampshire when my Mom had a cardiac arrest. When I was gone at my Dad's my Mom was in a coma for three days and she stayed in the hospital for three weeks. When I heard about her having a cardic arrest I was shocked. My Dad first told me she had a heart attack. I like that she is home now more because we can spend time together instead of me staying at school until 5 o'clock. I don't like the fact my Mom has to go inside more often because she gets tired out. I don't like it because she can't drive yet but she will be able to drive in December. I pray for everbody and your family and if you have it I pray for you. Jesse
Posted on Oct 13, 2002, 8:12 PM from IP address 152.163.188.194
My mom also has cardiomyopathy but i can tell you everything will be ok. Your mom loves you and her doctors will make her better. Cardiomyopathy never goes away but it does get better. please email me and i will be glad to answer any questions you have. If your mom wants she can post on my moms problems on www.heart-help.net my mom plus many others on there will answer any questions she has and they will also be a good friend.prayer for you and your mom.Mary
Posted on Dec 7, 2002, 2:02 PM from IP address 152.163.188.194
hi, im samantha, im 15, and my mom has been posting on the other site for awhile. Everything will be ok, I was diagnosed with my disease in december, and like your mom i have a pacemaker and icd, these protect you if your heart is not doing what it should be, so just remember that, your mom has back-up in case she gets into some trouble. If you have more questions about the disease, or what someone goes through while having it, i'll be glad to help. --samantha
Posted on Jul 30, 2003, 1:17 AM from IP address 64.53.207.109
Well im sorry for taking so long to write back but i have a seven month old daughter and i have really been busy. Im sorry to hear that u have cardiomyopathy.opps got to go the baby is crying email me and we will talk
Posted on Jan 9, 2004, 12:13 PM from IP address 152.163.253.4
My name is Michael
I'm 16 and live in Australia. I contracted Endocarditis and had to have a Mitral Valve Replacement 3 days later that was back in 1998 I want to talk or email other teens who understand about INR and all the things I can't do and how it feels...I've been looking everywhere but I can't find anyone every time I go into the chat room here because of the time difference it's empty ....maybe it would be better to email someone ?
Thanks
Michael
Posted on May 18, 2002, 4:42 AM from IP address 144.134.7.59
hello
well i was just looking about the net and i fould this site
im 14 from n.z i got well not sure really just know i was looking thou some of letters from the doc the other day and thats what it said i had hypetophic cardiomyopathy
my aunit and grandmother both died from it and my dad also got it and is alway in and out of hospltil
any way just wonering if there any other ppl out there round my
age that got a bad heart and slows them down at a lot of ever day stuff margie
Posted on Apr 12, 2002, 4:10 AM from IP address 203.96.111.201
Yes there are alot of people with it but im not sure what it is you have i have to check up on that. This is a forum that you can tyalk about your problems and any one you need to hear from is available to talk to. My mom runs a big support group for cardiomyopathy and i help out give me a day or so and i promise you will have more imformation on what you have. and im sorry about you dad. and aunt and grandmother.
Posted on Apr 20, 2002, 9:42 PM from IP address 209.214.7.163
Hi everyone. I am Natascha and I have Congestive heart failure. I just recently found ouut December 12 and had surgery. I was lucky i made it because i was in the last stage and the doctor did not know if i would be ok. But I stuck through. I am 15 and was wondering if any other teens have this and would like to talk with me about it. thanks
Posted on Mar 29, 2002, 8:54 PM from IP address 66.137.201.133
There is another girl on here who has cardiomyopathy but not the same kind you have. You said you got a transplat right? I know what it feels like to be scared and worry all the time i personally dont have chf or cardiomyopathy but my mom and gradfather do so i live with it every day. I hope your feeling weel and i want you to know were here for support and lend a friend or 2
Posted on Apr 20, 2002, 9:46 PM from IP address 209.214.7.163
Hi Natascha My name is Jesse. I posted tonight and read your post and wanted to e-mail you. I am not a teenager I am only 11. I thought it was scary. My Mom has cardiomyophy and she had a cardic arrest. How do you feel about having a heart transplant? Are you scared? What is your Enjection Fraction? Where are you going to have your transplant? I know it is scary but they do them a lot now. Does it make you feel different from all the other kids? Do kids not want to be your friend because you have CHF? I pray that you get better. Jesse
Posted on Oct 13, 2002, 8:23 PM from IP address 152.163.188.194
Well i hpe that every one n here is doing ok. Nancy m mom told me about Ryan and m glad that hes ok and that Dan Marino caled him. Well i hope every one is ok.
Posted on Nov 25, 2001, 4:18 PM from IP address 64.12.105.172
I THINK YOU HAVE A VERY NICE PLACE HERE! I HAVE A 14YR OLD BOY WHO HAS DCM AND IS IN NEED OF A TRANSPLANT. MAYBE I CAN GET HIM TO COME ON AND SAY A FEW WORDS BUT YOU KNOW HOW TEENS ARE!!!! YOU ARE SUCH A SWEET GIRL AND I AM SURE YOUR MOM IS VERY PROUD TO HAVE YOU AS A DAUGHTER!
LOVE NANCYWIS
Posted on Oct 22, 2001, 3:05 PM from IP address 64.118.36.113
Thank you. Well if you want I can e-mail Ryan and talk to him. You can tell him that if he wants to talk he can come to my page and leave a message or if he wants it to be private he can e-mail me. My mom is proud of me and I am very proud of her too. I love my mom very much.
Love
Mary
Posted on Oct 31, 2001, 4:26 PM from IP address 209.214.0.151
I know this is a tragic time and this board is here for support and I want every one to know that no matter who the person is they also need support and that we should all love each other at this time and try not to fight and for all you adults hiding this from your kids will only scare them more you should talk about it with them and let them know that every thing is going to be ok. Tell them that you love them and no matter what happens you will always be there either in body or sprit of mind. They need to know that they have your support.
Love hugs and prayers,
Mary
Posted on Sep 14, 2001, 11:13 AM from IP address 209.214.3.179
Thanks for your thoughtful message...was surprised to learn from your Mom about problems and emergencies in your area. We are closer to NYC, but here in our town things are relatively quiet. Rest assured, though, that all is being done to ensure the safety of our young people. Prayers for you and your friends...Hugs, Lee
Posted on Sep 20, 2001, 12:38 PM from IP address 204.141.216.113
Hello I am looking for a e-mail address to one of the heart forums The forum is called The Heary Bunch can anyon please help me if they have heard of this place???????? PLEASE!!!!! Just e-mail it to me ebjvan@bright.net I will be very thankful!!!!!
Posted on Jul 26, 2001, 5:28 PM from IP address 209.143.34.34
Wanted to say Hi and wish you good luck with your forum--I think it is really a great idea and will put up a link at my site, if you would like me to.
I'm sure parents can be a trial sometimes...believe it or not, I do remember being young...at least I think I do! LOL
One thing that all should remember is that the treatments are getting better and that there is a lot of research in this area, but what you are doing is from the heart...I'm sure you will help a lot of folks! Best wishes....and hugs, Lee
Posted on Jul 6, 2001, 8:44 AM from IP address 204.141.216.143
Lee,
Thanks. I would like to have a link on your page. This is somthing I am doing from the heart and i kow that if i have a problem that my mom ( Ginger) will help me out in any way she kows how.
hugs and prayers,
Mary
Posted on Jul 6, 2001, 3:40 PM from IP address 208.63.234.100
My name is Jesse. I posted tonight and read your post and wanted to e-mail you. I am not a teenager I am only 11. I thought it was scary. My Mom has cardiomyophy and she had a cardic arrest. How do you feel about having a heart transplant? Are you scared? What is your Enjection Fraction? Where are you going to have your transplant? I know it is scary but they do them a lot now. Does it make you feel different from all the other kids? Do kids not want to be your friend because you have CHF? I pray that you get better. Jesse
!!